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Subject:
From:
Paige Petersen <[log in to unmask]>
Reply To:
Date:
Wed, 2 May 2001 09:54:04 -0500
Content-Type:
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Kathy........ my opinion...  many live with physical pain.  Physical pain
for me comes and goes but is not constant.    Emotional pain is different
and regardless of CP, we all have some sort of emotional pain.  Attitude
makes a world of difference!
Paige


>From: Kathy Jo Pink <[log in to unmask]>
>Reply-To: "[log in to unmask]" <[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: A Question
>Date: Wed, 2 May 2001 09:57:16 -0500
>
>Ranya,
>
>Do you know for sure if all of people who live with Cerebral Palsy , live
>in chronic pain?  People's attitudes have caused me to have a lot of
>anguish and emotional pain.
>
>Kathy
>
>
>
>
>
>
>-----Original Message-----
>From:   Rayna Lamb [SMTP:[log in to unmask]]
>Sent:   Friday, April 20, 2001 8:10 AM
>To:     [log in to unmask]
>Subject:        Re: A Question
>
>Arnold, I would have to say that I agree with you.  The difficulties
>that we all experience, although sometimes a direct and unavoidable
>result of CP - ie chronic pain, are too often a result of the world's
>inability to understand and accomodate difference.  Although people's
>attitudes to me and the CP have caused me a great deal of anguish and
>pain, I would be unwilling to pander to the AB world's desire to cure
>us rather than accept us by referring to it as an illness.  I don't
>want a cure, I want acceptance for the totality of who I am and can
>be.
>Discrimination and prejudice are illnesses, CP isn't.
>
>Rayna
>
>On Thu, Apr 19, 2001 at 03:18:59PM -0500, Anthony Arnold wrote:
>     I don't know how to word this without saying something wrong that
>might
>     offend people.  However I believe that it might be a good idea for
>some
>of
>     you and even myself to look around our local area for an ARC,
>Independent
>     Living Center or whatever disability resources we might have to go to
>for
>     help in better understanding in Cerebral Palsy because it isn't an
>illness
>     or a life limiting thing like some of you love to believe.  I realize
>that I
>     might have to use a power chair and a communication device for my life
>but
>     so what, its a lot better than being in bed dying from cancer, aids or
>     whatever else.  I would be careful selecting the word illness to
>describe
>     Cerebral Palsy if you want to open up a life insurance policy because
>you
>     would find it very difficult being accepted for one, it took me a long
>time
>     to get mine because everybody was believing that I had an illness like
>     cancer, and not just a physical disability that I can't die from .
>
>     Thanks,
>     Anthony
>
>     -----------------------------------
>     Join my AAC listserv today at http://groups.yahoo.com/group/arnoldaac
>
>
>       ----- Original Message -----
>       From: Bobby Greer
>       To: [log in to unmask]
>       Sent: Thursday, April 19, 2001 1:42 PM
>       Subject: Re: A Question
>
>
>       In a message dated 4/19/01 6:07:47 PM, [log in to unmask]
>writes:
>
>       << I'd like to know why  Kathy Jo asked the question.  Kathy?
>        >>
>
>       I have no earthly idea, Kathy.
>
>       Bobby

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