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Subject:
From:
"Barber, Kenneth L." <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Fri, 27 Sep 2002 11:51:51 -0400
Content-Type:
text/plain
Parts/Attachments:
text/plain (151 lines)
I am not really sure of the differences. I know I have a diagnosis of cp
with associated dystonia.

-----Original Message-----
From: J. McCarthy [mailto:[log in to unmask]]
Sent: Friday, September 27, 2002 11:39 AM
To: [log in to unmask]
Subject: Re: Fibromyalgia

How is dystonia different from spasms of spastic CP?

Jen

--- "Barber, Kenneth L." <[log in to unmask]> wrote:
> Dystonia is the uncontrollable movements in certain
> parts  of the body. Ie:
> muscles in say your arm contract and jerk pretty
> much on their own.
>
> Guys am I explaining this right?
>
> I have it in the cervical part of my spine (as well
> as limbs) and have
> herniated disk at c3 and c7 with bone spurs. In
> those vertabre associated
> with those disk.
>
> -----Original Message-----
> From: J. McCarthy [mailto:[log in to unmask]]
> Sent: Friday, September 27, 2002 11:09 AM
> To: [log in to unmask]
> Subject: Re: Fibromyalgia
>
> What is dystonia?
>
> I don't know if it's aging with CP or what...I just
> know that there are mornings where I too feel like a
> truck hit me.  And with my left knee, there are
> times
> where it is so stiff and stuck in its current
> position
> that my husband has to bend (or straighten) it for
> me.
>  If I have been sitting for awhile, it's very hard
> to
> get up because my knees are so stiff.  Everything
> just
> seem to worsen within the last 6 months.
>
> Last week, I had a panic attack / depression down
> swing because I was sure that my good left side
> wasn't
> going to support me any more and that I may have
> something more debilitating than my CP.  In that
> frame
> of mind, I was imagining all kinds of losses of
> independance and stuff.
>
> BTW, I do office work at a large University.
>
> Jen
>
>
> --- "Barber, Kenneth L." <[log in to unmask]> wrote:
> > SOUND LIKE AGING WITH CP TO ME. I'd bet they will
> > not find any of what they
> > are looking for.
> >
> >
> > What kind of work do you do? Do you have dystonia
> > with your cp? If so,
> > where?
> >
> > -----Original Message-----
> > From: J. McCarthy [mailto:[log in to unmask]]
> > Sent: Friday, September 27, 2002 10:32 AM
> > To: [log in to unmask]
> > Subject: Fibromyalgia
> >
> > Sorry I've been out of touch for awhile.  Been
> >
> > My doc and I are trying to figure out why my
> joints
> > ache and stuff (feel like I'm 100 years old).  We
> > have
> > discovered two things so far:
> >
> > 1)  I have 2 herniated discs in my neck which is
> > causing my left arm and hand (the good side!) to
> be
> > in
> > pain and/or numb at times.
> >
> > 2)  My left knee (good side) which has been
> > increasing
> > hurting me and is stiff and weak, came up negative
> > on
> > the MRI.  I thought that they would see lots of
> > arthritis...which could then explain the achyness
> > that
> > I have in other major joints.
> >
> > So, we now are going to look at lupus, MS and
> > FMS....
> >
> > TTYL,
> > Jen
> >
> > --- Magenta Raine <[log in to unmask]> wrote:
> > > Ken, was it you or Kyle who thought he might
> have
> > > fibromyalgia, I forget. Any
> > > way, feeling like you got mugged or ran over by
> a
> > > truck is what fibromyalgia
> > > (FMS) feels like.
> > >
> > > mag
> > >
> > > www.itilink.com/traine.iti
> >
> >
> > =====
> > TTYL,
> > Jennifer
> >
> > __________________________________________________
> > Do you Yahoo!?
> > New DSL Internet Access from SBC & Yahoo!
> > http://sbc.yahoo.com
>
>
> =====
> TTYL,
> Jennifer
>
> __________________________________________________
> Do you Yahoo!?
> New DSL Internet Access from SBC & Yahoo!
> http://sbc.yahoo.com


=====
TTYL,
Jennifer

__________________________________________________
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