I myself too, would never agree to get Botox, for one thing I'm too
relaxed already, so it would be a waste of time and money.  Another
thing is you have to really watch it and get to your appointments on
time, I had a friend who once made that mistake and almost died.  Most
of us don't have that responsible enough attendants to watch and help
us. .  Yes, Botox does help some but I feel it's a stepping stone for
another development more effective.

Thanks,
Anthony
Visit me at www.ara1.net

-----Original Message-----
From: St. John's University Cerebral Palsy List
[mailto:[log in to unmask]] On Behalf Of Kathy Salkin
Sent: Monday, December 23, 2002 8:53 AM
To: [log in to unmask]
Subject: Re: Ken's procedure; was RE: holiday greetings

I think it depends on the patient and factors such as extent of
spasticity and
body weight, dosage, etc., etc.  My neuro told me it'd be a trial and
error
process to determine the optimal dosage and even then the times of the
effectiveness would be variable so that he couldn't predict it, at least
in
the first few years.  In other words, the effects could wear off in 3
months
one time, 2 the next, and then 3.5 months.  It all depends on a number
of
factors, which makes sense to me.

Kat

On Mon, 23 Dec 2002 08:35:57 -0600 Anthony Arnold <[log in to unmask]>
wrote:

> Actually the effects from Botox are supposed to
> last 3 months, which is
> a reasonable amount of time accordingly to me.
>
> Thanks,
> Anthony
> Visit me at www.ara1.net
>
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]] On
> Behalf Of Cleveland, Kyle E.
> Sent: Monday, December 23, 2002 8:13 AM
> To: [log in to unmask]
> Subject: Re: Ken's procedure; was RE: holiday
> greetings
>
> That's what all my research turned up--Botox is
> not a panacea and the
> effects don't last long.  I was hoping that
> Ken's neuro had some news
> about
> Botox that I hadn't heard.  Ken, are you having
> a single injection, a
> series
> of injections, or are you having a pump
> implanted?
>
> -Kyle
>
> -----Original Message-----
> From: Kathy Salkin
> [mailto:[log in to unmask]]
> Sent: Monday, December 23, 2002 9:10 AM
> To: [log in to unmask]
> Subject: Re: Ken's procedure; was RE: holiday
> greetings
>
>
> Thought you were already investigating the
> possibility of botox?  If
> not,
> then
> you should.  It's not in the books for me (yet)
> because my surgery eased
> up
> the spasticity and it's not so bad.  It'll
> never go away completely, my
> neuro
> says, not even with botox.
>
> Kat
>