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St. John's University Cerebral Palsy List
Date:
Sat, 25 Sep 1999 00:49:11 -0300
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sorry!!! but not always! please, you can read Bobath or Gessell and you can
see it!! sorry about my english! annie
-----Original Message-----
De: Susan Attermeier <[log in to unmask]>
Para: [log in to unmask] <[log in to unmask]>
Fecha: Viernes 24 de Septiembre de 1999 21:28
Asunto: Re: RESEARCH PROJECT


>Dear Joanne:
>
>I am using the definition of "severe" that corresponds with the following
>description:  Children who can sit in a chair but need adaptive seating for
>trunk control and to maximize hand function.  Children move in and out of
>chair sitting with assistance from an adult or a stable surface to push or
>pull up on with their arms.  Children may at best walk short distances with
a
>walker and adult supervision but have difficulty turning and maintaining
>balance on uneven surfaces.  Children are transported in the community.
They
>may acheive self-mobility using a power wheelchair"
>
>If he can sit on the floor with his hands free for play, he probably does
not
>fit the description.  Does he walk with a walker?
>Charles Darr wrote:
>
>> Susan,
>> What is your definition of severe?  Alex is 4.5yrs old.  Has spastic quad
>> CP.  Was on Gtube for 2.5 years and has other medical problems.  He can
>> crawl ( bunny hop), feed himself but not any other self care.  I don't
>> consider him  severe by any means but that's me.
>> Joanne
>> Joanne
>> [log in to unmask]
>> -----Original Message-----
>> From: Susan Attermeier <[log in to unmask]>
>> To: [log in to unmask] <[log in to unmask]>
>> Date: Friday, September 24, 1999 1:00 PM
>> Subject: RESEARCH PROJECT
>>
>> >Hi!
>> >
>> >I am a pediatric physical therapist and have gained a lot of insight by
>> >being on this email list.  Now I have a question for you - For my
>> >doctoral dissertation I am interviewing parents of 5-year old children
>> >with severe cerebral palsy, collecting information on the mobility
>> >skills of the children and quality of life for children and families.
>> >Is there any way to set up a way for parents on this list to email me if
>> >they would like to participate?  The telephone interview lasts about 30
>> >minutes, and the family receives $20 for participating.  There is such a
>> >great need for accurate information in this area, and parents are the
>> >obvious best source.  Can somebody out there give me some guidance as to
>> >how to proceed?
>> >
>

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