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Cerebral Palsy List <[log in to unmask]>
Date:
Sun, 30 Jan 2011 18:03:11 -0800
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Deri is correct. and you were close. Feel free to visit anytime. 


On Sun, 30 Jan 2011 15:30:00 -0500, Kathleen Salkin <[log in to unmask]>
wrote:
> I'd say somewhere in South America, on the west coast.
> 
> Kat
> 
> On Sun, Jan 30, 2011 at 3:11 PM, Tamar Raine <[log in to unmask]>
wrote:
> 
>> I don't know, maybe the phillipines?  This shit about the schools is
>> awful!
>>
>>
>> Thanks,
>> Tamar
>>
>> ~~~~~~~~
>> When the power of love overcomes the love of power,
>>
>> the world will come to know [log in to unmask]
>> http://www.zazzle.com/TamarMag*Yes, please include the * so I get paid
a
>> little
>> higher royalty.
>>
>>
>>
>>
>>
>> ________________________________
>> From: "[log in to unmask]" <[log in to unmask]>
>> To: [log in to unmask]
>> Sent: Sun, January 30, 2011 7:45:31 AM
>> Subject: Re: Brown's Destructive Plan for Regional Centers, Medi-Cal,
>> SSI,
>> IHSS,
>> READ then the good news LONG
>>
>> Ok I still read you guys but don't often respond. My daughter is in
>> education and is completely distraught. She runs a charter school and
>> can't
>> believe the regulations they are being charged with preparing. Thanks
to
>> Obama teachers are now officially technocrats, no teaching required
just
>> fill out the form correctly. They have placed or rather are trying to
>> place
>> every child's entire history and record on line so if your kid is
called
>> into the principals office rightly or wrongly it will be in his
permanent
>> record on line. His whole health history everything about him and my
>> daughter cannot believe this went by without a whimper from anyone. Oh
>> and
>> California has hired a military contractor to evaluate these records to
>> see
>> who might join a gang. So they are not private. And every time my
>> daughter
>> tries to upload her schools information the system crashes. All the
>> records
>> have to match from every school or your funding will be cut off. So if
>> you
>> move your kid from a school and enroll him in another and there is a
date
>> discrepancy in the record you won't pass muster. It's sheer insanity.
>> Here is an example of California failure, just one of many others more
>> horrific, but one I witnessed. Last year my grandson contacted whooping
>> cough and we knew it because there was an outbreak in Big Sur. My
>> daughter
>> has TWO good health insurances. We took him to the doctor and said he
has
>> whooping cough. Answer: No he doesn't, no throat swab, $150, and
>> penicillin, he can go to school in 3 days according to the doctor. Went
>> back ten days later "He has whooping cough. The penicillin did nothing.
>> Please swab his throat."
>> No. We'll try a different one."
>> Wrong diagnosis again. Of course this is highly communicable, kn own as
>> the 100 day cough and we have diligently been trying to get it
diagnosed
>> for over a month to keep him out of school. Third visit same result.
>> Emergency room visit - we did our best to avoid this but the kid was
>> sick -
>> finally a throat swab and yes he had whooping cough, and after a 5 hour
>> wait a bill for around $5000, no bed, no overnight, nothing.
>> Then a call from the state health department acting like we were the
>> irresponsible ones.
>> THEN called into the school for truancy because he had missed so much.
>> The
>> DA was there along with his counselor, the VP, me, his mother and
father
>> and this is a 6th grader. The DA tells him he is the type of kid she
sees
>> in court. This is a really good kid who hangs out with me after school
>> partly because of the peer pressure to do the wrong thing. He comes
home
>> and tells me kids are selling drugs at school. Every day he is with me
>> and
>> that's why I am there so my daughter and her husband can work full time
>> and
>> go to school. We give the whooping cough excuse and they don't even
back
>> off. Of course we must present all the office visits and evidence. But
>> then
>> the VP finally got a call from the State Health Dept. You would think
my
>> daughter as an educator and someone who runs her own school might be
>> given
>> the benefit of the doubt. Oh no, not in this climate. Commopn sense and
>> humanity are out the window. What I still can't believe is that we were
>> quiet and polite during this instead of fighting back but then that is
>> how
>> bad it has gotten, afraid to speak out, for fear my grandson will
>> experience the retaliation.
>> It is fascism in America. I had high hopes for Obama but now the good
>> news
>>
>> I have left the country....voted with my feet this time
>> I now live in a peaceful country, tranquil, socialist where all the
>> cultural events are free and you can get your teeth cleaned for $5.
>> Doctor
>> visits are between $3 and $25 and the follow up is free. I have had two
>> experiences with the hospital, both very humane with better care than I
>> could get in the states. I should write about them to contrast third
>> world
>> medicine with our so called first world service.  My rent is $200 for 3
>> bedrooms and two baths, I have a terrace for plants and I could live
out
>> of
>> the city center for half that. The food is organic, wholesome and
>> delicious. If you are over 65 the bus fare is 12.5 cents, under 65 it
is
>> a
>> quarter. The people are friendly. I sleep better knowing I am not
>> promoting
>> war by simply having money in the bank.
>> The Vice President is in a wheelchair. The President told the US he
could
>> not renew their bases unless they gave him one in Miami. I am on the
>> Pacific. There is more biodiversity in this country than almost
anywhere
>> on
>> the planet. More percentage of land is protected than any other country
>> in
>> the world. Where am I?
>>
>> I often think how great it would be for some people with disabilities
to
>> come here have full time help, live in a building and support one
>> another.
>> You could live so much better than you live now. Your skills would be
>> welcome.
>> My mother has been diagnosed with Alzheimers and I could not afford to
>> take care of her in the states but I could here and I would still have
a
>> life.
>> A
>>
>>
>> On Sat, 29 Jan 2011 17:52:26 -0800, Tamar Raine <[log in to unmask]>
>> wrote:
>> > UPDATE:  STOP THE PRESSES! =0A=0A=0A=0APlease read, and then write to
>> the
>> > G=
>> > overnor, as well as your legislators! Join =0Aus on the front lines
in
>> > Berk=
>> > eley and Sacramento.=0A=0AGovernor Brown is poised to destroy the
>> > Lanterman=
>> >  Act. I don't know if he truly =0Arealizes that axing the Lanterman
Act
>> >  wil=
>> > l severely impact those of us with =0Acerebral palsy, Autism, Down
>> > Syndrome=
>> > , Asperger Syndrome, and other =0Adevelopmental disabilities. Is this
>> the
>> > s=
>> > ame guy who appointed ED Roberts, a =0Aquadriplegic, to head several
>> > office=
>> > s such as the Dept. of Vocational =0ARehabilitation in
1977???=0A=0AHe
>> has
>> > =
>> > ALSO proposed that those on Medi-cal, be allowed only TEN doctor or
>> > =0Aoutp=
>> > atient visits per year! =0A=0ARead on to see who will DIE as a
>> result!=0A=
>> > =0AGovernor Brown, this is a reckless proposal! We need to tailor
each
>> > indi=
>> > vidual's =0Aabilities to services that they need. Each  person is an
>> > indivi=
>> > dual, and the =0Awhole idea is that we live in the community of our
>> > choice,=
>> >  and not in =0Ainstitutions where we are locked away, abandoned and
>> >  forgott=
>> > en by society and =0Apoliticians. Your sweeping budget strikes a FEAR
>> > in
>>
>> > m=
>> > y heart so deep it's all I =0Acan do to not weep and feel defeated. I
>> > am
>> > 55=
>> >  years old, and was a beneficiary  =0Aof California's "golden age" of
>> >  educa=
>> > tion for children with disabilities back =0Awhen an education in
>> > California=
>> >  actually meant something. =0A=0A=0AMy parents did whatever they
could
>> to
>> >  h=
>> > elp me be as independent as I could be. =0AFor most of my life I was
>> very
>> > i=
>> > ndependent, but growing older with Cerebral =0APalsy has meant
>> arthritis,
>> > l=
>> > oss of function in my right hand, fibromyalgia, leg =0Apain. My spine
>> > x-ray=
>> > s look like that of a much older person of 85. I have =0Aadapted to
>> > life
>> > in=
>> >  a wheelchair, and I'm still striving to keep as independent =0Aas
>> >  possible=
>> > . Without my Regional Center service providers, I would not have much
>> > =0Aof=
>> >  a life. I do not have 18 hour care, I do not need it, or want it, as
I
>> >  hav=
>> > e =0Athings that keep me busy, but many others do! They actually need
>> > someb=
>> > ody there =0A24 hours a day, due to epilepsy, autism, and other
>> > disabilitie=
>> > s.  Don't turn the =0Aclock back. These are people who are living
proof
>> > tha=
>> > t community-based care DOES =0Awork!=0A=0AGovernor, I know you want
to
>> > keep=
>> >  the old taxes going. But I think you ALSO NEED =0Amore taxes of the
>> rich,
>> >  =
>> > and big corporations. They are NOT HURTING! How about =0Asuing the
>> > banks
>> > th=
>> > at caused the housing  industry to land slide? How about =0Ahalting
the
>> > leg=
>> > islature's gas cards which they very coolly voted for
=0Athemselves!?!
>> My
>> > I=
>> > HSS workers who make meager wages in comparison to a =0Alegislator's
>> > salary=
>> > , would love gas cards too! I  support taking away Cell =0Aphones for
>> all
>> > G=
>> > overnment  employees except first responders, and also taking =0Aaway
>> > those=
>> >  Government issued cars. I am sure you can find much more waste to
cut
>> >  =0At=
>> > han taking away people with disabilities' civil rights. I am
referring
>> to =
>> > =0AOlmstead, in which the Supreme Court ruled that forcing people
with
>> > disa=
>> > bilities =0Ato live in institutions that CAN live in a community of
our
>> > cho=
>> > ice, with =0Asupports, is unconstitutional. Institutions cost
billions
>> > more=
>> >  than =0Acommunity-based care. You must KNOW THAT THE NURSING HOME
>> >  INDUSTRY=
>> >  HAS LONG =0ASUCKED UP billions OF DOLLARS. PLEASE STOP THE MADNESS!
>> These
>> >  =
>> > proposals are =0Ainhumane! =0A=0A=0A =0AI find it unconscionable and
>> > unacce=
>> > ptable that you are proposing all these cuts =0Ato social welfare --
>> while
>> > =
>> > NOT requiring increases in corporate taxes by the =0Asame proportion.
I
>> am
>> > =
>> > referring to the cuts to IHSS. We have already been cut =0A3.5
percent.
>> To
>> > =
>> > cut us again, to the tune of 8.4 percent is going to really =0Aaffect
>> some
>> > =
>> > of us in a terrible way! Let's see you increase corporate taxes by
>> > =0A12
>> > pe=
>> > rcent. Either that or tell the Corporations to HIRE more People with
>> > =0Adis=
>> > abilities! How is that for an idea? There is a new generation of
>> > college
>> =
>> > =0Aeducated people with disabilities graduating soon. =0A=0A=0AI have
>> not
>> > h=
>> > eard about one single corporate executive GOING TO JAIL OR losing
>> =0Atheir
>> > =
>> > multi-million-dollar benefits! I haven't heard of any upper
management
>> > =0Aw=
>> > hite collar workers having to decide whether they need groceries, or
a
>> > batt=
>> > ery =0Afor their power wheelchair more. Please THINK about this! 
It's
>> > real=
>> > ly a day =0Athat exposes the huge gap between those who have a lot of
>> > money=
>> > , and those who =0Adon't. Power VS Non-power. Which side are you on,
>> > Jerry?=
>> > =0A=0A=0AThe corporations (which the Supreme Court have deemed to be
a
>> > pers=
>> > on!?!) have =0Athe opportunity in our country, to make as  much money
>> > as
>> > th=
>> > ey like, BUT there =0Ais nothing promising them that they can just
TAKE
>> &
>> > T=
>> > AKE without giving some =0Areasonable fee back. How many millions and
>> > billi=
>> > ons do the rich need for heavens =0Asake?! How many cars and homes,
and
>> > vac=
>> > ations does anybody need? When are they =0Agoing to feel the pinch?
The
>> > cou=
>> > ntry IS IN this downturn BECAUSE of GREED! =0A=0A=0AREALLY? You are
>> going
>> > t=
>> > o charge those on SSI and other  low-income people to pay =0A$50.00
for
>> > Eme=
>> > rgency Room visits??? And up to $200 a day for hospital stays?
=0AThese
>> > are=
>> >  human beings whose incomes range from $600 to $830. Uhh Jerry, I
don't
>> >  =0A=
>> > know, aren't emergency room visits by their very nature, emergencies,
>> and
>> > n=
>> > ot =0Asomething we can plan for? Especially if rents are so high they
>> take
>> > =
>> > most of our =0Aincome? If you cut medicaid payments to health
>> > providers,
>> > th=
>> > en you will indeed =0Asee a rise in emergency room visits! I read
today
>> > tha=
>> > t 25 years ago, ER visits =0AWERE the CAUSE of Homelessness!  I can
>> > foresee=
>> >  THOUSANDS living and DYING in the =0Astreets if your proposals are
put
>> >  int=
>> > o effect!=0A=0AThose who are thinking, "Who needs ten visits to the
>> > doctor?=
>> > " have no idea what =0Athe effects of this will be.  Let us paint a
>> > picture=
>> > : If your mother or sister =0Ahas to have kidney dialysis 3 times a
>> week,
>> > w=
>> > ell, that's two weeks and then they =0Abegin dying within 30 days
after
>> > the=
>> > se draconian limits take effect.  Go here =0Afor the best picture;
>> > (thanks,=
>> >  Beth!)=0Ahttp://www.ethiopianreview.com/health/201001/?p=3D150306
>> >  =0A=0APe=
>> > ople  with cancer will be cut off after ten treatments. Standard
>> > treatments=
>> >  =0Afor breast cancer; chemotherapy is done every two to three weeks
>> >  for
>> >  th=
>> > ree to =0Asix months. In the words  of the Cancer Society,
=E2=80=9CTen
>> > doc=
>> > tor=E2=80=99s visits would not =0Aallow a woman to  complete any one
of
>> > the=
>> > se courses of treatment. Furthermore, =0Athese  numbers do not take
>> > into
>> > ac=
>> > count the visits required to diagnose the  =0Acancer." =0A=0A=0AThe
>> > medicai=
>> > d issue which Brown has put before the Supreme Court is a terrible
>> > =0Aidea!=
>> >  If medicaid gets cut, we can expect many more deaths as a result.  I
>> >  =0Afo=
>> > ught Arnold's cuts, and I and thousands more, will fight these
>> > draconian
>> > cu=
>> > ts =0Ato vital programs. Cutting Medicaid is not the way to solve the
>> > budge=
>> > t crises.=0A=0AWe should have seen the baby  boomer issue coming a
>> DECADE
>> > a=
>> > go! We should have =0Aprepared for all the elders now entering the
>> In-Home
>> > =
>> > Services rolls. I keep =0Athinking of the words to an old song;
>> =0A=0A"If
>> > l=
>> > iving were a thing that money  could buy, =0A the rich  would live
and
>> the
>> > =
>> > poor would die." =0A=0AThe blood will be on your hands, Governor
Brown,
>> > you=
>> >  and all those who keep =0Achopping the programs. =0A=0AI am so weary
>> >  of
>> >  ha=
>> > ving to fight for the rights of the poor, the elderly, the
=0Adisabled,
>> in
>> > =
>> > other words; the disenfranchised!  =0A=0ABut as long as I can still
>> > type
>> > an=
>> > d still get up in the morning, I shall carry =0Aon.
=0A=0A=0AFormerly,
>> > (app=
>> > ointed by Jerry Brown) on the Oakland Mayor's Commission on
=0APersons
>> > with=
>> >  Disabilities, I am a citizen with multiple disabilities.
>> >  =0A=0A=0ATamar
>> >  Ra=
>> > ine=0A510-893-0565=0A325 Vernon St.=0AOakland, CA 94610
>> >
>> > -----------------------
>> >
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>> >
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>>
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