Seeing this discussion come up reminds me of my first personal care
attendant I had right after I decided to move out of my parent's house.  At
that time we didn't really know how much assistance I would need, so we
decided to hire a live-in attendant, and the guy we hired worked wonderfully
to the most part.  Before we hired him, he spent several years working for
nursing homes where everything is structured, and when he came to live with
me, I had a structured schedule to follow, and whenever we decided to go
outside to sit he would call my parents to tell them until my parents
finally told him they appreciate it but they don't need or want to know
everything and that I could basically do anything.  And now 8 years later,
I'm basically independent with a attendant coming in a few hours a day.  I
can come and go any time I please besides the hours I work which is
understandable.  

Kathy, I know this is something you don't want to hear, but I think you have
to prove yourself before they grant you the level of independence you want.
It's a lot like if I had a 16yr old daughter, she would need to prove
herself before I would give her the car keys.  I think it's this common
principal we have to follow in independent living too.  I have even had to
prove myself at work, and recently I got my 4th raise in 5 years.  Sure
everybody likes chocolate cake but it doesn't come without paying a price.  

Thanks, 
Anthony 
Visit my website at www.anthonyarnold.net
-----Original Message-----
From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf Of
[log in to unmask]
Sent: Sunday, April 02, 2006 5:31 PM
To: [log in to unmask]
Subject: Re: Babysitter Issue

I know of one woman her parents are partly paying for her  care.  Her 
attendants won't let her have any true freedom.  Some care  providers have
it in 
their procedures to be so by the book it's like you're a  child under their
care 
instead of being a disabled adult needing basic  care.
 
Walk away  before I finish what you started. Face to face I will put you in 
your place. End  this game before I finish what you started. Face to face 
everything will  change.

"Stand Up" by Trapt

-----------------------

To change your mail settings or leave the C-PALSY list, go here:

http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy

-----------------------

To change your mail settings or leave the C-PALSY list, go here:

http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy