Kathy Jo,
Mag's right. Back when I was working 1:1 with folks with disabilities
was shortly after the de-institutionalization movement got a good head
of steam, and Colorado was working on moving people into community
programs. After 1999, and the Olmstead Supreme Court decision, it has
been easier to get people into least restrictive environments.
It is expensive, but in most cases, it's less expensive than 24/7 care
in a nursing home or similar setting. This is possible because the
staff in nursing home4s get paid more than the staff for most
disability providers. In '88 and '89, when I was doing direct staffing
for folks with disabilities, the minimum wage was increased from $3.85
an hour to $4.25 an hour, so everybody that started when I did got a
raise. A lot of states are now working to bring up the wages of their
direct support staff to a livable wage.
A lot of the people receiving community based services are covered under
Medicaid Home and Community Based Waiver Services, because in addition
to being a better way for people to live (healthier, more independent),
it's less expensive. In Wyoming, the cost to house people in our one
remaining institution for people with disabilities is about 3X as much
as serving people in the community.
My grandmother's health in the last two years of her life was so bad
that we had to put her in a nursing home, and it cost $4500.00 per
month. The average cost to serve someone in community programs in
Wyoming is around $2100.00 per month
Kendall
An unreasonable man (but my wife says that's redundant!)
The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all
progress depends on the unreasonable man.
-George Bernard Shaw 1856-1950
-----Original Message-----
From: Magenta Raine [mailto:[log in to unmask]]
Sent: Tuesday, August 02, 2005 12:24 PM
To: [log in to unmask]
Subject: Re: FW: [Fwd: Re: I'm Back]
It is in their plans. It is their right and everybody's rights to live
in
the least restrictive environment.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[log in to unmask]
How can we expect new results if we do what we've always done?
War is outdated for the 21st century!
> [Original Message]
> From: Kathy Jo Pink <[log in to unmask]>
> To: <[log in to unmask]>
> Date: 8/2/2005 6:47:36 AM
> Subject: Re: FW: [Fwd: Re: I'm Back]
>
> Kendall Corbet,
>
>
>
> How could these people afford 24/7 Care? Kathy Jo Pink
>
>
>
>
>
>
>
>
>
>
>
> Kendall David Corbett wrote:
>
> >Kathy Jo,=20
> >
> >Depending on the person you're working with to draw up a plan, they
may
> >use either term. In my work environment, a PCP deals more with how
> >things are now, and a PFP deals with how you'd like them to be.
> >
> >In the agency I worked for when I first got out of college, there
were a
> >couple of people who had 24/7 care. In general they were the people
> >with the most severe physical and/or cognitive disabilities; usually
> >they had a lot of seizures and so needed someone there in case they
had
> >a seizure.
> >
> >Kendall Corbett
> >
> >An unreasonable man (but my wife says that's redundant!)
> >
> >The reasonable man adapts himself to the world; the unreasonable one
> >persists in trying to adapt the world to himself. Therefore, all
> >progress depends on the unreasonable man.
> >
> >-George Bernard Shaw 1856-1950
> >
> >
> >-----Original Message-----
> >From: Kathy Pink [mailto:[log in to unmask]]=20
> >Sent: Monday, August 01, 2005 5:02 AM
> >To: [log in to unmask]
> >Subject: FW: [Fwd: Re: I'm Back]
> >
> >Is a PFP the same as Person-Centered Planning?Is there such a thing
as
> >one
> >to one twenty-four hour round-the-clock care? I know it would be
> >expensive
> >.
> >
> >
> >
> >Kathy Pink
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >>From: Kathy Jo Pink <[log in to unmask]>
> >>To: [log in to unmask]
> >>Subject: [Fwd: Re: I'm Back]
> >>Date: Sun, 31 Jul 2005 08:15:16 -0500
> >>
> >>
> >>
> >>-------- Original Message --------
> >>Subject: Re: I'm Back
> >>Date: Tue, 19 Jul 2005 14:30:33 -0600
> >>From: Kendall David Corbett <[log in to unmask]>
> >>Reply-To: St. John's University Cerebral Palsy List
> >><[log in to unmask]>
> >>To: [log in to unmask]
> >>
> >>
> >>
> >>Kathy Jo said:
> >>
> >>
> >>
> >>>I don't have a plan to make it happen? Any ideas, anyone?
> >>>
> >>>
> >>Get in touch with Linda Rowley at the Waisman Center, and ask her
for
> >>info on personal futures planning, and someone close to Lancaster
that
> >>can help you put a PFP (personal future plan) together. I could
refer
> >>you to several people in Wyoming, but since you're in Wisconsin,
that
> >>won't work. Also, ask Linda about a program called "Partners in
> >>Policymaking." I think something like that would be immensely
helpful
> >>to you!
> >>
> >>Here are links to:
> >>
> >>1. The Waisman Center, and to Linda Rowley
> >>
> >>Waisman Center on Human Development=3D20
> >>University of Wisconsin-Madison=3D20
> >>1500 Highland Ave=3D20
> >>Madison, WI 53705-2280=3D20
> >>Main Phone: 608-263-1656=3D20
> >>Main Fax: 608-263-0529=3D20
> >>Website: http://www.waisman.wisc.edu/
> >>
> >>
> >>Family Village Internet Project
> >>Linda Rowley, LPN, BS
> >>608-263-5973
> >>[log in to unmask]
> >>http://www.familyvillage.wisc.edu/index.htmlx
> >>
> >>
> >>Jean Boehnen probably would have answers to your general questions
on
> >>CP:
> >>
> >>Cerebral Palsy Clinic
> >>Jean Boehnen, RN=3D09
> >>608-263-7335=3D09
> >>[log in to unmask]
> >>
> >>
> >>2. Personal Futures Planning,=3D20
> >>
> >>http://www.iidc.indiana.edu/cedir/pfplanbib.html
> >>
> >>The above link is a bibliography on person centered planning, which
is
> >>another name for personal futures planning.=3D20
> >>
> >>3. Partners in Policymaking, which got started in Minnesota.
> >>
> >>http://www.partnersinpolicymaking.com/
> >>
> >>Kendall Corbett
> >>
> >>An unreasonable man (but my wife says that's redundant!)
> >>
> >>The reasonable man adapts himself to the world; the unreasonable one
> >>persists in trying to adapt the world to himself. Therefore, all
> >>progress depends on the unreasonable man.
> >>
> >>-George Bernard Shaw 1856-1950
> >>
> >>
> >>-----Original Message-----
> >>From: Kathy Jo Pink [mailto:[log in to unmask]]=3D20
> >>Sent: Tuesday, July 19, 2005 11:20 AM
> >>To: [log in to unmask]
> >>Subject: Re: I'm Back
> >>
> >>
> >>I like living with my parents. I don't know what I want. I guess
> >>ideally , I want to live in my own place (apartment?). If that does
> >>
> >>
> >not
> >
> >
> >>work I will go to an adult family home, a group home, or a nuring
home
> >>(a nursing home would probably be my last choice.) I don't have a
plan
> >>to make it happen? Any ideas, anyone?
> >>
> >>
> >>
> >>
> >>
> >>
> >
> >_________________________________________________________________
> >Don't just search. Find. Check out the new MSN Search!
> >http://search.msn.click-url.com/go/onm00200636ave/direct/01/
> >
> >
> >
> >
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