ROFL!!! BUSY!!! We finally got all our stuff out of the apartment, and into
the house. I did, however, have an interesting thing happen yesterday. Was
taking Gillis outside and the left front wheel of my manual wheelchair fell
off as I was getting on my wheelchair lift *sigh* I hate it when the
wheelchair does that... yes, it has happened before.

I've changed website providers (from GeoCities to Simplenet), so I have
been busy moving my page (although, all the service dog stuff is still at
Geo). *sigh*

Dana
[log in to unmask]
<http://danawheels.simplenet.com>

At 09:32 AM 11/18/99 -0500, you wrote:
>Dana,
>
>         How are you???
>
>Bobby
>
>
> >Judi, Doctor John Loeser over at the University of Washington Pain Clinic
> >did my pump, and I think he can give you a good opinion. Call him at (206)
> >598-4282.
> >
> >Dana and Gillis
> >[log in to unmask]
> >
> >At 07:47 PM 11/17/99 -0500, you wrote:
> >>Hi!
> >>
> >>My name is Judi Kloper and I live in Oregon, along with my husband Peter
> >>Owens and three of our five kids.  The older two were adopted as older kids
> >>from India and now live out of the home; one lives in a group home.
> >>
> >>Our three at home are by birth, from India and from China.
> >>
> >>Our son, Dana, is now 17 1/2 yrs old, and came to us from India at 8 weeks
> >>old weighing just four pounds on arrival.  He is gorgeous, smart, charming,
> >>and has severe quad. spastic and athetoid CP.  He's a senior in high school
> >>and thinking about college.  This is a huge task we're starting
> on--exploring
> >>colleges and careers for a kid who is so very physically limited.
> >>
> >>Anyway, Dana has the baclofen pump (for 14 months now) and though he's had
> >>some improvement, it's not been near as wonderful as we had heard it'd been
> >>for others.  In fact, he has wanted it out.  He used to get botox
> injections,
> >>which helped for a while, but then it seemed that he needed to get
> injections
> >>more and more frequently.  He'd gone without them for about a year and just
> >>recently got some in his left leg cus of the pain he was having, but it
> only
> >>worked for a brief time.
> >>
> >>Last June Dana had hip surgery and hamstring release (that was in both
> legs,
> >>and just the left hip was operated on.)  While finally he doesn't have the
> >>hip pain he was having, he now has incredible pain in his left upper thigh.
> >>Can't move him from any position to another, in fact, just moving his left
> >>leg an inch or two causes incredible pain for him.  He continues to take
> >>Klonzapin (Clonipin?) at night, along with one ibuprofen.  The doctors at
> >>Shriners in Portland haven't come up with a reason for this or a "fix," and
> >>we are tired of going up there and saying the same thing, yet our son is in
> >>intense pain and he cannot, nor can we, go on like this.  This is
> supposed to
> >>be his senior year, which means good times as well as some learning
> >>times....but it's really been difficult for him to focus.
> >>
> >>Therefore, we would like to seek a second opinion.  If any of you in the
> >>Seattle area could recommend some physicians for us to see (orthopedic with
> >>specialty in CP and a neuroligist with specialty in CP, Baclofen,
> Botox, etc)
> >>I sure would appreciate it.
> >>
> >>Thanks so much.
> >>Judi