Bobby-


First of all, thank you for the speedy reply.  I will contact the other list right
away.  Thanks also for the ethical pointers.  Not to worry - all of my procedures
have been approved by the extremely anal Institutional Review Board at the
University of North Carolina at Chapel Hill!  All families will sign and return
consent forms before the interview.

This a test of perseverence for sure - ten  years worth what with single parenting,
working, going to school part time.  But is has been exciting and fulfilling - I
hope to graduate in June of 2000.

Bobby Greer wrote:

> Susan,
>
>         There is another list connected with this server. The e-mail address is
> <[log in to unmask]>.
>
>         I am also sending a copy of listserv research ethics, I just happen
> to recieve this morning:
>
>         - Are you a participant in the group or just an observer?
> - Is the group aware of the research being done and what will happen with
> the research findings?
> - Was permission obtained from the group for you to study and write about it?
> - Are the people who own or run the list aware of the purpose of the
> research, and have they given their permission?
> - Is the group's messages easily accessed by internet users (is it a public
> space?) or is it operated privately with restricted access?
> - Do the group members PERCEIVE the group as being private?
> - Are the identities of the group member's protected (anonymity) in any
> reports of the research?
> - Is the identity of the group itself protected in the reports?
> - Is informed consent (permission) obtained for the use of quotes or for
> mentioning specific members?
> - Are group members who are quoted or mentioned in the report still active
> in the group?
> - Is their any possibility of harm to group members by the research and
> what is discussed in the research report?
> - Has the research been approved by a research ethics committee?
> - Is it possible for outsiders to find messages in the group by using web
> search engines?
>
> I hope some of this is helpful. I have been a participant of this list for
> almost four years. I am also a Ph.D., so if I can offer advice, emotional
> solace, whatever; feel free to ask.
>
> Good luck,
>
> Bobby
>
> >Hi!
> >
> >I am a pediatric physical therapist and have gained a lot of insight by
> >being on this email list.  Now I have a question for you - For my
> >doctoral dissertation I am interviewing parents of 5-year old children
> >with severe cerebral palsy, collecting information on the mobility
> >skills of the children and quality of life for children and families.
> >Is there any way to set up a way for parents on this list to email me if
> >they would like to participate?  The telephone interview lasts about 30
> >minutes, and the family receives $20 for participating.  There is such a
> >great need for accurate information in this area, and parents are the
> >obvious best source.  Can somebody out there give me some guidance as to
> >how to proceed?