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Subject:
From:
Nina Woulff <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Sat, 1 Nov 2003 20:30:36 -0400
Content-Type:
text/plain
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My 13 year old son (quad CP) has had the trial for intrathecal baclofen and has been deemed a good candidate. .
He  walks with a walker (sith increasing difficulty due to stiffness of legs), has never had any surgeries and as a baby was extremely floppy. With a great deal of physical therapy he has developed some strength in his torso (can now sit well, uses a manual wheelchair moderately well).

He started developing spasticity in his legs when he was about 7 years old.  He has had botox twice - the first time it worked and then second time the results were minimal.

I would appreciate hearing from anyone who has had direct experience with use of the baclofen pump
Specifically I would like to know:
Did the procedure result in improved function (better walking or standing)?
Were there any negative side-effects? (i.e. decreased function such as floppy torso?)

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