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Subject:
From:
"Barber, Kenneth L." <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Tue, 2 May 2000 07:11:31 -0400
Content-Type:
text/plain
Parts/Attachments:
text/plain (63 lines)
i'd be right happy to confer another honorary "cp" if anyone needs it.

-----Original Message-----
From: Michael H. Collis [mailto:[log in to unmask]]
Sent: Saturday, April 29, 2000 1:14 AM
To: [log in to unmask]
Subject: Re: hi


Beth,

First, welcome to the list. We're alway glad to have new members.
Secondly, we also have our own ways of diagnosing C.P. So beware!!! :)
As our honorary cp'er with PN found out, once we got you., We GOT
you!!!  :)  The third thing I would do would be to to question the
diagnosis of the doctor. because the spinal problems associated with
C.P. that I'm aware of is scoliosis or curvature of the spine... For a
person to have both Spinna Bifida and C.P. would be very rare, I
think... It's not to say It hasn't happened, but in my 45 years of
living with C.P., it hasn't come to my knowledge... How about yours,
Bobby? Elizabeth?   Doctors can be wrong, as I'm sure many on this list
can attest..

Mike
]

Beth Anderson wrote:
>
> Hi everyone,
>
> I'm new here, thought I would say hi - just joined today and am glad to
see this
> is a talkative bunch.  I am 'newly diagnosed', I suppose you would say,
and I
> have a few questions, that are probably dumb ones!  I am nearly 40 years
old
> (will be in June), and was born in 1960 with spina bifida.  I was never
told I
> had CP at all - my doctor yesterday wrote it on the sheet of paper I
needed to
> get my handicapped tags (placard) for our cars at home and I looked on
internet,
> and I saw somewhere that CP is frequently associated with some spinal
problems -
> I do not think it mentioned SB by name.  Are there any on here that are
spina
> bifida??  Is it prevalent amongst SB people to "get" CP or maybe be born
with
> it, and it not be diagnosed?
>
> As to your 'speech' postings - I seem to have a problem, but I am not sure
if
> it's CP related - I speak "clearly" do not slur anything, but - when I go
to
> speak, sometimes my mouth wants to work faster than my brain, and I tend
to
> "ramble" or "stammer"........ is that a problem related to CP (or is that
just
> "me"!!)..............
>
> Thanks, and nice meeting you.
> Beth

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