Hi Nancy,
I'm 16 with CP. I'm not as severe as your daughter's case is (I use a
wheelchair, but the CP only affects my legs), but... I use a depilatory to
remove hair instead of a razor. It's much safer with my involuntary
movements. I can do it myself, and Ashley probably could do it easier than
using a razor. For Breanne, a depilatory might be better because she won't
have people coming at her with sharp objects, and it can be taken care of in
the same time as a shower, making it much less obtrusive. Just smooth on
like moisturizer, sit for a few minutes, then wash it off during the regular
shower. If you have any questions, just ask. And if your girls want to
talk to another "teenager" with CP as they get older, just give me a holler.
I would have loved to know another young person with CP when I was their
age. Good luck!
~Joy~
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http://www.geocities.com/joy0823
"Forget regrets, or life is yours to miss." - Mimi in RENT
----- Original Message -----
From: "Nancy C. Butala" <[log in to unmask]>
Sent: Monday, May 29, 2000 6:23 PM
Subject: NEWCOMER
> Hi! I am a newcomer to this list. I live in Michigan and have
10-year-old
> twin girls (born at 26 weeks), both with disabilities. For some
background,
> Ashley (twin A) was born weighing 1 lb. 6 oz. She is blind in her right
eye
> and very near-sighted in her left. She has mild CP on her left side. She
is
> currently in 3rd grade and is doing very well, considering she is learning
> Braille. She does get PT at school and tries so very hard to do things
just
> like the other kids. She is having difficulty learning how to ride a
bike.
> She admits to her fear of falling off (I truly am fearful that she won't
be
> able to see cars). My other daughter, Breanne (twin B) weighed in at 1
lb.
> 15 oz. She is severely multiply impaired--has CP on her right side, blind
in
> both eyes, 2 shunts for Hydracephalus (had a trache from the time she was
an
> infant but was decannulated in September 1992); seizure tendency (has only
> had 2 to speak of). Breanne can't do for herself and is in a wheelchair.
> The good news is that she has made alot of progress, but now that the
girls
> are getting older, I am trying to prepare myself for puberty.
>
> In a nutshell, here is my question . . . In Ashley's case, she will be
able
> to learn how to shave and take care of her own hygiene. In Breanne's
case,
> however, I am wondering about the shaving. She has gotten a headstart on
her
> sister with the hair growth, so now I'm thinking "My gosh, it's coming!".
> For anyone out there, how did you deal with puberty? My husband is also a
> wreck about having to deal with it. Will I need to shave Breanne's arms
and
> legs as all women do as they get older?
>
> Any insight is greatly appreciated. I look forward to hearing from some
of
> you.
>
> Nancy Butala
> Michigan
>
>
>
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