Yes the link is me and my maternal grandmother. I had Grand Mal and she had petit mal. I also had an uncle with grand mal.
Thanks,
John Runer
> Date: Fri, 24 Jul 2009 08:17:59 -0700
> From: [log in to unmask]
> Subject: Re: Upadate on Mary Runer
> To: [log in to unmask]
>
> great that she likes her brace. is there a heriditary link of epilepsy in the family?
>
>
> Thanks,
> Tamar
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> Tamar Mag Raine, Commissioner,
>
> Oakland Mayor's Commission on People with Disabilities
>
> [log in to unmask]
> http://www.zazzle.com/TamarMag*
> www.cafepress.com/tamarmag
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
>
>
>
> ________________________________
> From: JOHN RUNER <[log in to unmask]>
> To: [log in to unmask]
> Sent: Friday, July 24, 2009 5:57:07 AM
> Subject: Upadate on Mary Runer
>
> Hello,
>
>
>
> My daughter Mary 9 has recently been confirmed by sleep deprived EEG to have
> Epilepsy on top of her CP..it is due to
> excessive activity in her left hemisphere and seems to be triggered by
> fatigue. The neurologist is not medicating her yet as she has only had
> one confirmed seizure ( he is having us call if we even suspect another seizure
> and will start her on meds at that time, he is also having her come in every
> couple of months for tracking). Mary also had a second pulmonary
> function test and it confirmed a twenty percent reduction in lung volume
> capacity compared to her height and weight. Her pulmonologist said to
> keep her away from the larger cities as much as possible as she is very
> sensitive to air pollution and we live at high elevation above the smog. At
> this point Mary does not require oxygen but she did until around two and a
> half. Mary has her right ankle afo and actually loves it! She is
> not tripping her self now. We also recently started a special needs
> trust for her. I sat and cried about the epilepsy as I used to have grand
> mal seizures and still shake on occasion. I took Phenobarbital and it was
> terrible, apparently if she starts meds now they are much better.
>
>
>
> Thanks,
>
>
>
> John Runer dad to Mary RH, cognitive delays, Epilepsy
>
>
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