C-PALSY Archives

Cerebral Palsy List

C-PALSY@LISTSERV.ICORS.ORG

Options: Use Forum View

Use Monospaced Font
Show Text Part by Default
Show All Mail Headers

Message: [<< First] [< Prev] [Next >] [Last >>]
Topic: [<< First] [< Prev] [Next >] [Last >>]
Author: [<< First] [< Prev] [Next >] [Last >>]

Print Reply
Subject:
From:
Kyle E Cleveland <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Wed, 3 Mar 1999 11:24:52 -0500
Content-Type:
text/plain
Parts/Attachments:
text/plain (84 lines)
My wife, Laura, wonders, "do all you spastic guys get stiff in the wrong
places as you age?"

Barber, Kenneth L. wrote:
>
> i usually can't stay in bed much longer than 3-4 before rigamortus sets up.
>
> > -----Original Message-----
> > From: Jan Nottmeier [SMTP:[log in to unmask]]
> > Sent: Tuesday, March 02, 1999 3:31 PM
> > To:   [log in to unmask]
> > Subject:      Re: [      Re: Quiet list]
> >
> > Yes, I did but I could only stand it for about 3-4 hours max.
> >
> >
> > Chester M Worwa wrote:
> >
> > > Did you ever try wearing the braces at night?
> > >
> > > On Mon, 1 Mar 1999, Jan Nottmeier wrote:
> > >
> > > > Hi Linda,
> > > >
> > > > Saw your post and I thought I should respond.  I had my tendons
> > > > lengthened behind my knee about ten years ago.  I had my tendons
> > > > lengthened in Germany because the health care insurance covered it
> > > over
> > > > there at that time But that is another story.  Anyway before I left
> > > for
> > > > Europe my doctor in the United States told me to expect to be
> > > > hospitalized 4-5 days, had I elected to have the operation in the
> > > US.
> > > >
> > > > Right after my surgery I had major cramps for about ten days while I
> > > was
> > > > in a hospital in Germany .As for recovery time, my legs were in a
> > > cast
> > > > for about 6 weeks, followed by 2 months of exercises to get the
> > > strength
> > > > back into my legs.  After spending 6 weeks in a cast I was unable to
> > >
> > > > lift my legs out of the cast after it was cut open.
> > > >
> > > > Following the surgery I could really tell a difference I was able to
> > >
> > > > strengthen my legs out and could stand up tall.  After about seven
> > > > months however, my legs started to get weaker again.  My doctor at
> > > the
> > > > time said that I should start wearing braces again to straighten out
> > > my
> > > > lags again.  But I had trouble sleeping because they really hurt at
> > > > times.  I should have most likely tried to fight through the
> > > discomfort
> > > > but I didn't.  Now my walking is getting worse and worse with time,
> > > but
> > > > I don't know if I want to go back to that doctor.
> > > >
> > > > I didn't mean to discourage you, but I wanted you to know the
> > > possible
> > > > advantages and possible drawbacks both short term and long term.
> > > But I
> > > > am not a doctor, I was telling my personal experiences, so the
> > > surgery
> > > > may work for you.  If you do decide to have the operation I hope
> > > > everything will go well for you.  If you have any more questions
> > > please
> > > > do not hesitate to ask.
> > > >
> > > > Jan
> > > >
> > > >
> > > >
> > > > Linda Wagner wrote:
> > > >
> > > > > Kim,
> > > > >
> > > > > How old were you when you had your achilles tendons lengthened?
> > > What
> > > > > was your recovery like?
> > > > >
> > > > > Linda
> > > >

ATOM RSS1 RSS2