Hello Ana Villaflor,
First your english is fine no problem.
I had my operation when I was 11 years old and now I am 21.
I tried Bobath when I was very little when I stilled lived in Germany I
believe. Bobath according to my mother it did help a lot which I
started at the age of 5. I am not sure if you have ever heard of Vojta
it is another technique which helped me open my hand. Before the
technique my hand was like a fist, now I can use my hands normally. I
just write some what slower then people without CP. I started Vojta
within weeks after I left the hospital.
In 1985 I traveled to Budapest Hungary to go to the Pėto Institute, in
order to be taught the Pėto technique. There I learned how to walk with
assistance of people and canes. The people at the institute also said I
should not have an operation. It is there where I made a mistake
instead of staying there for a year I left after two months, because I
did not understand the people. Also I did not fully understand why I
was there, I cried constantly. I was 7 years old at the time. If I
would have stayed there I think I could be walking by myself now. But I
can not change the past I can only think of the future.
About the surgery, it was recommend by an American doctor not a PT. We
also tried exercises again, but I began to loose interest. Currently I
am not doing any exercises except walking on a treadmill at college.
But my walking is getting worse now, I am start PT again, I don't know.
Jan
ana villaflor wrote:
> Sorry, Jan but its available for me to know how old you were when you
> were
> operated,and how old are you now.
> Iam pt here in Argentina.Its common here, that when children with CP
> are
> ready to learn how to walk or to begin with all the first steps about
> walking,surgeons decide to operate them.
> Sometimes Pt fight with the doctors, because we want to do the best
> without
> surgery,avoiding the idea and having controlls on deformedly positions
> with
> speciall tecniques as Bobath,Pėto,Castillo Morales or Souchard ones.In
> my
> own experience, if we will wait all about the surgery in patients and
> we wil
> not have the rutin exercises at home,nothing changes.
> Sorry about my english. Ana Villaflor.
>
> -----Original Message-----
> De: Jan Nottmeier <[log in to unmask]>
> Para: [log in to unmask] <[log in to unmask]>
> Fecha: Lunes 1 de Marzo de 1999 23:11
> Asunto: Re: [ Re: Quiet list]
>
> >Hi Linda,
> >
> >Saw your post and I thought I should respond. I had my tendons
> >lengthened behind my knee about ten years ago. I had my tendons
> >lengthened in Germany because the health care insurance covered it
> over
> >there at that time But that is another story. Anyway before I left
> for
> >Europe my doctor in the United States told me to expect to be
> >hospitalized 4-5 days, had I elected to have the operation in the US.
>
> >
> >Right after my surgery I had major cramps for about ten days while I
> was
> >in a hospital in Germany .As for recovery time, my legs were in a
> cast
> >for about 6 weeks, followed by 2 months of exercises to get the
> strength
> >back into my legs. After spending 6 weeks in a cast I was unable to
> >lift my legs out of the cast after it was cut open.
> >
> >Following the surgery I could really tell a difference I was able to
> >strengthen my legs out and could stand up tall. After about seven
> >months however, my legs started to get weaker again. My doctor at
> the
> >time said that I should start wearing braces again to straighten out
> my
> >lags again. But I had trouble sleeping because they really hurt at
> >times. I should have most likely tried to fight through the
> discomfort
> >but I didn't. Now my walking is getting worse and worse with time,
> but
> >I don't know if I want to go back to that doctor.
> >
> >I didn't mean to discourage you, but I wanted you to know the
> possible
> >advantages and possible drawbacks both short term and long term. But
> I
> >am not a doctor, I was telling my personal experiences, so the
> surgery
> >may work for you. If you do decide to have the operation I hope
> >everything will go well for you. If you have any more questions
> please
> >do not hesitate to ask.
> >
> >Jan
> >
> >
> >
> >Linda Wagner wrote:
> >
> >> Kim,
> >>
> >> How old were you when you had your achilles tendons lengthened?
> What
> >> was your recovery like?
> >>
> >> Linda
> >
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