C-PALSY Archives

Cerebral Palsy List

C-PALSY@LISTSERV.ICORS.ORG

Options: Use Forum View

Use Monospaced Font
Show Text Part by Default
Show All Mail Headers

Message: [<< First] [< Prev] [Next >] [Last >>]
Topic: [<< First] [< Prev] [Next >] [Last >>]
Author: [<< First] [< Prev] [Next >] [Last >>]

Print Reply
Subject:
From:
Tamar Raine <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Sun, 30 Jan 2011 12:11:33 -0800
Content-Type:
text/plain
Parts/Attachments:
text/plain (355 lines)
I don't know, maybe the phillipines?  This shit about the schools is awful!

 
Thanks,
Tamar

~~~~~~~~
When the power of love overcomes the love of power, 

the world will come to know [log in to unmask]
http://www.zazzle.com/TamarMag*Yes, please include the * so I get paid a little 
higher royalty.





________________________________
From: "[log in to unmask]" <[log in to unmask]>
To: [log in to unmask]
Sent: Sun, January 30, 2011 7:45:31 AM
Subject: Re: Brown's Destructive Plan for Regional Centers, Medi-Cal, SSI, IHSS, 
READ then the good news LONG

Ok I still read you guys but don't often respond. My daughter is in
education and is completely distraught. She runs a charter school and can't
believe the regulations they are being charged with preparing. Thanks to
Obama teachers are now officially technocrats, no teaching required just
fill out the form correctly. They have placed or rather are trying to place
every child's entire history and record on line so if your kid is called
into the principals office rightly or wrongly it will be in his permanent
record on line. His whole health history everything about him and my
daughter cannot believe this went by without a whimper from anyone. Oh and
California has hired a military contractor to evaluate these records to see
who might join a gang. So they are not private. And every time my daughter
tries to upload her schools information the system crashes. All the records
have to match from every school or your funding will be cut off. So if you
move your kid from a school and enroll him in another and there is a date
discrepancy in the record you won't pass muster. It's sheer insanity.
Here is an example of California failure, just one of many others more
horrific, but one I witnessed. Last year my grandson contacted whooping
cough and we knew it because there was an outbreak in Big Sur. My daughter
has TWO good health insurances. We took him to the doctor and said he has
whooping cough. Answer: No he doesn't, no throat swab, $150, and
penicillin, he can go to school in 3 days according to the doctor. Went
back ten days later "He has whooping cough. The penicillin did nothing.
Please swab his throat."
No. We'll try a different one." 
Wrong diagnosis again. Of course this is highly communicable, kn own as
the 100 day cough and we have diligently been trying to get it diagnosed
for over a month to keep him out of school. Third visit same result.
Emergency room visit - we did our best to avoid this but the kid was sick -
finally a throat swab and yes he had whooping cough, and after a 5 hour
wait a bill for around $5000, no bed, no overnight, nothing. 
Then a call from the state health department acting like we were the
irresponsible ones. 
THEN called into the school for truancy because he had missed so much. The
DA was there along with his counselor, the VP, me, his mother and father
and this is a 6th grader. The DA tells him he is the type of kid she sees
in court. This is a really good kid who hangs out with me after school
partly because of the peer pressure to do the wrong thing. He comes home
and tells me kids are selling drugs at school. Every day he is with me and
that's why I am there so my daughter and her husband can work full time and
go to school. We give the whooping cough excuse and they don't even back
off. Of course we must present all the office visits and evidence. But then
the VP finally got a call from the State Health Dept. You would think my
daughter as an educator and someone who runs her own school might be given
the benefit of the doubt. Oh no, not in this climate. Commopn sense and
humanity are out the window. What I still can't believe is that we were
quiet and polite during this instead of fighting back but then that is how
bad it has gotten, afraid to speak out, for fear my grandson will
experience the retaliation.
It is fascism in America. I had high hopes for Obama but now the good news

I have left the country....voted with my feet this time 
I now live in a peaceful country, tranquil, socialist where all the
cultural events are free and you can get your teeth cleaned for $5. Doctor
visits are between $3 and $25 and the follow up is free. I have had two
experiences with the hospital, both very humane with better care than I
could get in the states. I should write about them to contrast third world
medicine with our so called first world service.  My rent is $200 for 3
bedrooms and two baths, I have a terrace for plants and I could live out of
the city center for half that. The food is organic, wholesome and
delicious. If you are over 65 the bus fare is 12.5 cents, under 65 it is a
quarter. The people are friendly. I sleep better knowing I am not promoting
war by simply having money in the bank. 
The Vice President is in a wheelchair. The President told the US he could
not renew their bases unless they gave him one in Miami. I am on the
Pacific. There is more biodiversity in this country than almost anywhere on
the planet. More percentage of land is protected than any other country in
the world. Where am I?

I often think how great it would be for some people with disabilities to
come here have full time help, live in a building and support one another.
You could live so much better than you live now. Your skills would be
welcome. 
My mother has been diagnosed with Alzheimers and I could not afford to
take care of her in the states but I could here and I would still have a
life.
A


On Sat, 29 Jan 2011 17:52:26 -0800, Tamar Raine <[log in to unmask]>
wrote:
> UPDATE:  STOP THE PRESSES! =0A=0A=0A=0APlease read, and then write to
the
> G=
> overnor, as well as your legislators! Join =0Aus on the front lines in
> Berk=
> eley and Sacramento.=0A=0AGovernor Brown is poised to destroy the
> Lanterman=
>  Act. I don't know if he truly =0Arealizes that axing the Lanterman Act
>  wil=
> l severely impact those of us with =0Acerebral palsy, Autism, Down
> Syndrome=
> , Asperger Syndrome, and other =0Adevelopmental disabilities. Is this
the
> s=
> ame guy who appointed ED Roberts, a =0Aquadriplegic, to head several
> office=
> s such as the Dept. of Vocational =0ARehabilitation in 1977???=0A=0AHe
has
> =
> ALSO proposed that those on Medi-cal, be allowed only TEN doctor or
> =0Aoutp=
> atient visits per year! =0A=0ARead on to see who will DIE as a
result!=0A=
> =0AGovernor Brown, this is a reckless proposal! We need to tailor each
> indi=
> vidual's =0Aabilities to services that they need. Each  person is an
> indivi=
> dual, and the =0Awhole idea is that we live in the community of our
> choice,=
>  and not in =0Ainstitutions where we are locked away, abandoned and
>  forgott=
> en by society and =0Apoliticians. Your sweeping budget strikes a FEAR in

> m=
> y heart so deep it's all I =0Acan do to not weep and feel defeated. I am
> 55=
>  years old, and was a beneficiary  =0Aof California's "golden age" of
>  educa=
> tion for children with disabilities back =0Awhen an education in
> California=
>  actually meant something. =0A=0A=0AMy parents did whatever they could
to
>  h=
> elp me be as independent as I could be. =0AFor most of my life I was
very
> i=
> ndependent, but growing older with Cerebral =0APalsy has meant
arthritis,
> l=
> oss of function in my right hand, fibromyalgia, leg =0Apain. My spine
> x-ray=
> s look like that of a much older person of 85. I have =0Aadapted to life
> in=
>  a wheelchair, and I'm still striving to keep as independent =0Aas
>  possible=
> . Without my Regional Center service providers, I would not have much
> =0Aof=
>  a life. I do not have 18 hour care, I do not need it, or want it, as I
>  hav=
> e =0Athings that keep me busy, but many others do! They actually need
> someb=
> ody there =0A24 hours a day, due to epilepsy, autism, and other
> disabilitie=
> s.  Don't turn the =0Aclock back. These are people who are living proof
> tha=
> t community-based care DOES =0Awork!=0A=0AGovernor, I know you want to
> keep=
>  the old taxes going. But I think you ALSO NEED =0Amore taxes of the
rich,
>  =
> and big corporations. They are NOT HURTING! How about =0Asuing the banks
> th=
> at caused the housing  industry to land slide? How about =0Ahalting the
> leg=
> islature's gas cards which they very coolly voted for =0Athemselves!?!
My
> I=
> HSS workers who make meager wages in comparison to a =0Alegislator's
> salary=
> , would love gas cards too! I  support taking away Cell =0Aphones for
all
> G=
> overnment  employees except first responders, and also taking =0Aaway
> those=
>  Government issued cars. I am sure you can find much more waste to cut
>  =0At=
> han taking away people with disabilities' civil rights. I am referring
to =
> =0AOlmstead, in which the Supreme Court ruled that forcing people with
> disa=
> bilities =0Ato live in institutions that CAN live in a community of our
> cho=
> ice, with =0Asupports, is unconstitutional. Institutions cost billions
> more=
>  than =0Acommunity-based care. You must KNOW THAT THE NURSING HOME
>  INDUSTRY=
>  HAS LONG =0ASUCKED UP billions OF DOLLARS. PLEASE STOP THE MADNESS!
These
>  =
> proposals are =0Ainhumane! =0A=0A=0A =0AI find it unconscionable and
> unacce=
> ptable that you are proposing all these cuts =0Ato social welfare --
while
> =
> NOT requiring increases in corporate taxes by the =0Asame proportion. I
am
> =
> referring to the cuts to IHSS. We have already been cut =0A3.5 percent.
To
> =
> cut us again, to the tune of 8.4 percent is going to really =0Aaffect
some
> =
> of us in a terrible way! Let's see you increase corporate taxes by =0A12
> pe=
> rcent. Either that or tell the Corporations to HIRE more People with
> =0Adis=
> abilities! How is that for an idea? There is a new generation of college
=
> =0Aeducated people with disabilities graduating soon. =0A=0A=0AI have
not
> h=
> eard about one single corporate executive GOING TO JAIL OR losing
=0Atheir
> =
> multi-million-dollar benefits! I haven't heard of any upper management
> =0Aw=
> hite collar workers having to decide whether they need groceries, or a
> batt=
> ery =0Afor their power wheelchair more. Please THINK about this!  It's
> real=
> ly a day =0Athat exposes the huge gap between those who have a lot of
> money=
> , and those who =0Adon't. Power VS Non-power. Which side are you on,
> Jerry?=
> =0A=0A=0AThe corporations (which the Supreme Court have deemed to be a
> pers=
> on!?!) have =0Athe opportunity in our country, to make as  much money as
> th=
> ey like, BUT there =0Ais nothing promising them that they can just TAKE
&
> T=
> AKE without giving some =0Areasonable fee back. How many millions and
> billi=
> ons do the rich need for heavens =0Asake?! How many cars and homes, and
> vac=
> ations does anybody need? When are they =0Agoing to feel the pinch? The
> cou=
> ntry IS IN this downturn BECAUSE of GREED! =0A=0A=0AREALLY? You are
going
> t=
> o charge those on SSI and other  low-income people to pay =0A$50.00 for
> Eme=
> rgency Room visits??? And up to $200 a day for hospital stays? =0AThese
> are=
>  human beings whose incomes range from $600 to $830. Uhh Jerry, I don't
>  =0A=
> know, aren't emergency room visits by their very nature, emergencies,
and
> n=
> ot =0Asomething we can plan for? Especially if rents are so high they
take
> =
> most of our =0Aincome? If you cut medicaid payments to health providers,
> th=
> en you will indeed =0Asee a rise in emergency room visits! I read today
> tha=
> t 25 years ago, ER visits =0AWERE the CAUSE of Homelessness!  I can
> foresee=
>  THOUSANDS living and DYING in the =0Astreets if your proposals are put
>  int=
> o effect!=0A=0AThose who are thinking, "Who needs ten visits to the
> doctor?=
> " have no idea what =0Athe effects of this will be.  Let us paint a
> picture=
> : If your mother or sister =0Ahas to have kidney dialysis 3 times a
week,
> w=
> ell, that's two weeks and then they =0Abegin dying within 30 days after
> the=
> se draconian limits take effect.  Go here =0Afor the best picture;
> (thanks,=
>  Beth!)=0Ahttp://www.ethiopianreview.com/health/201001/?p=3D150306
>  =0A=0APe=
> ople  with cancer will be cut off after ten treatments. Standard
> treatments=
>  =0Afor breast cancer; chemotherapy is done every two to three weeks for
>  th=
> ree to =0Asix months. In the words  of the Cancer Society, =E2=80=9CTen
> doc=
> tor=E2=80=99s visits would not =0Aallow a woman to  complete any one of
> the=
> se courses of treatment. Furthermore, =0Athese  numbers do not take into
> ac=
> count the visits required to diagnose the  =0Acancer." =0A=0A=0AThe
> medicai=
> d issue which Brown has put before the Supreme Court is a terrible
> =0Aidea!=
>  If medicaid gets cut, we can expect many more deaths as a result.  I
>  =0Afo=
> ught Arnold's cuts, and I and thousands more, will fight these draconian
> cu=
> ts =0Ato vital programs. Cutting Medicaid is not the way to solve the
> budge=
> t crises.=0A=0AWe should have seen the baby  boomer issue coming a
DECADE
> a=
> go! We should have =0Aprepared for all the elders now entering the
In-Home
> =
> Services rolls. I keep =0Athinking of the words to an old song;
=0A=0A"If
> l=
> iving were a thing that money  could buy, =0A the rich  would live and
the
> =
> poor would die." =0A=0AThe blood will be on your hands, Governor Brown,
> you=
>  and all those who keep =0Achopping the programs. =0A=0AI am so weary of
>  ha=
> ving to fight for the rights of the poor, the elderly, the =0Adisabled,
in
> =
> other words; the disenfranchised!  =0A=0ABut as long as I can still type
> an=
> d still get up in the morning, I shall carry =0Aon. =0A=0A=0AFormerly,
> (app=
> ointed by Jerry Brown) on the Oakland Mayor's Commission on =0APersons
> with=
>  Disabilities, I am a citizen with multiple disabilities. =0A=0A=0ATamar
>  Ra=
> ine=0A510-893-0565=0A325 Vernon St.=0AOakland, CA 94610 
> 
> -----------------------
> 
> To change your mail settings or leave the C-PALSY list, go here:
> 
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy

-----------------------

To change your mail settings or leave the C-PALSY list, go here:

http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy

-----------------------

To change your mail settings or leave the C-PALSY list, go here:

http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy

ATOM RSS1 RSS2