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From:
"Barber, Kenneth L." <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Thu, 4 May 2000 07:26:30 -0400
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can't find dr. kark in phone book for atlanta.

-----Original Message-----
From: Russ White [mailto:[log in to unmask]]
Sent: Wednesday, May 03, 2000 11:22 AM
To: [log in to unmask]
Subject: Fwd: FA


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Russ White
Orlando, FL
 <A HREF="http://www.onelist.com/group/GeneticDisabilitiesUnite">ONElist :
GeneticDisabilitiesUnite</A>
 <A HREF="http://members.aol.com/rwtw128/mypage.html">My Autobiography</A>
"Do not suppose that, if you find something hard to achieve, it is beyond
human capacity; rather, if something is possible and appropriate for man,
assume that it must also be within your own reach." - Marcus Aurelius, _The
Meditations_

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Date: Tue, 02 May 2000 15:05:34 -0700
From: Gretchen Glick <[log in to unmask]>
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Russ, Years ago, I was in Dr. Pieter Kark's Physiostigmine trials at
UCLA for FA.  I dropped out of the trials, because I was rediagnosed
with CMT. Anyway, physiostigmine is now Synapton, and I think is being
used in Alzheimers, but you could surf around for it. Also, Dr. Kark at
that time was with UCLA, then moved to Atlanta, don't know if he' still
there, just thought I'd pass this info. along. I also wonder if anyone
with FA is using Neurontin? Seems to help in alot of diseases. Helps me
with CMT.

Gretchen



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