Stephanie,

You obviously are not of the older generation who remembers the pity party
that MDA put on to raise money, nor would you know the same about UCP or
Easter Seals.  Well, I do, and I remember feeling humiliated when I was
paraded as an object of pity at an UCP telethon when I was five.  I've never
forgotten it.  I am not a supporter of telethons.

Kat

----- Original Message -----
From: "Stephanie Emert" <[log in to unmask]>
Newsgroups: bit.listserv.c-palsy
To: <[log in to unmask]>
Sent: Saturday, September 07, 2002 11:18 AM
Subject: Re: MDA Telethon


>
> Hello, My name is Stephanie Emert and I am a graduate Physical Therapy
Student at the University of Missouri.  One of our assignments was to sign
up on a list serve.  So I have and I have been reading your messages for a
few days now.  For Stephen's comment about MDA.  I can tell you just from my
personal experience.  This summer I worked the MDA Camp Wonderland for a
week and it was amazing.  To see chldren of all different ages and of all
different abilities and with the highest spirits ever!  The week was truly a
tiring one, but it is something that I will never forget.  I recommend each
and everyone of you to take a week out of your year and share it with these
kids.  I know it is something that they look forward to each and every year.
I also do Respite care with a 16 y.o. boy with Duchenne's Muscular Dystrophy
and the only functional muscles he has left are in his wrist, hands and a
little bit in the forearm.  However, he is just as delightful too.  Yes the
firefighters do contribute a lot to MDA as well as Harley Davidson.  I
believe the work Jerry Lewis has done is of great need and benefit to these
children.
>
> Have a most blessed day!
> Stephanie
>
> Wounds from a friend can be trusted...and the pleasantness from one's
friends springs from his earnest counsel.
> Do not forsake your friend.
> Proverbs 27:5-6,9-10
> >From: Salkin Kathleen
> >Reply-To: "St. John's University Cerebral Palsy List"
> >To: [log in to unmask]
> >Subject: Re: MDA Telethon
> >Date: Sat, 7 Sep 2002 01:05:47 -0400
> >
> >I got it and responded this morning.
> >
> >Kat
> >
> >----- Original Message -----
> >From: "Stephen Allman"
> >Newsgroups: bit.listserv.c-palsy
> >To:
> >Sent: Saturday, September 07, 2002 12:49 AM
> >Subject: MDA Telethon
> >
> >
> > > I apologize this did not go through the first time I sent it. I do not
> >know what happened.
> > > _______________________________________________________________
> > >
> > > I have read many email's from different groups about Jerry Lewis and
the
> >MDA Telethon.I read one email that really bothered me, the person was
> >comparing the MDA Telethon to the 9/11 concert that raised millions.
Nobody
> >should ever compare the horrible tragedy of 9/11 to a telethon. 9/11 was
an
> >attack on the US and the civilized world I do not agree with everything
> >Jerry has done but I respect the great work he has done raising money but
> >also educating society what people go through. Some people believe he
hurts
> >the disabled community by using pity and using the term Jerry's kids. I
> >watched the MDA telethon more this year because I wanted to see why
people
> >were so angry. I was very impressed that at the beginning of the telethon
> >they honored all firefighters because of 9/11 and they have raised a lot
of
> >money for MDA. I do not like people to use pity and I did not see pity
being
> >used. During the telethon I saw a lot of information and story's of how
> >people live having Muscular Dystrophy. I learned a great deal and I was
> >entertained. I do not like the term Jerry's Kids but now I believe I
> >understand why Jerry's Kids is used. Children that have Muscular
Dystrophy
> >do not live a long life and I have had many friends that passed away
because
> >of Muscular Dystrophy. I hope and pray with the money raised the
scientist
> >can find a cure and people which means children and adults can live
better
> > >
> > > I applaud Jerry Lewis for all the work he has done and I hope people
give
> >him a break. Who else would take all these years to raise money and help
> >people
> > >
> > > Please let us know what you think.
> > >
> > > Stephen Allman
> > >
>
>
> --------------------------------------------------------------------------
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