I live on my own & love it ;)!



Cindy C 

 

-------Original Message-------

 

From: St. John's University Cerebral Palsy List

Date: Friday, November 07, 2003 03:05:11 PM

To: [log in to unmask]

Subject: Re: Empty Nest / soccer mom

 

Hi Betty.

 

I don't think parents ever stop worrying about kids with disabilities. BUT

you have to start preparing us when we are young to be independent. I know
there

is disparity in services

throughout the USA, but then you should look to model programs or
legislation

and say, we need that in our area. The Lanterman Act in California, for

instance, created the opportunity for people living in institutions to live
in

their communities, and have the support structure they need to not only help

people with developmental disabilities, but to also give their parents peace
of

mind in their old age.

 

I know of many people with severe disabilities who live in their own

apartments with the help of dedicated staff. They get money from in-home
support

services as well as Regional Center pays an agency of the person's own
choosing

with additional support. Granted if somebody has severe mental retardation,
then

additional help and support is carefully given, however even those with

cognitive disabilities can make many decisions about their own lives. Like
what to

make for meals, what they want to do on any given day, who to spend time
with.

etc.

 

Mag, 47, with quad athetoid CP/fibromyalgia, arthritis, djd.

.