Mag,

I partly disagree with you.  I think getting help is a good idea, but
asking Anee to give up something recreational is akin to giving in to her
CP.  Sure, life would be easier if we all just sat home in our own little
world, but I refuse to do that.  For too many years I sat home and was a
good little CP boy, but now it's my turn to live. Is life a struggle?  You
bet it is, I struggle and take risks everyday, that's just part of life.
 Anee whether she knows it or not is a role model for others, as you are
and hopefully me too.  There was a time I hated going out, wouldn't eat in
public because I was too embarassed, and then one day I said screw society
if they are bothered by me that's their problem not mine.  So I say to Anee
do what you can to be safe and control your problems, but NEVER curtail
your activities solely because you have CP.

Tom


-----Original Message-----
From:   Magenta Raine [SMTP:[log in to unmask]]
Sent:   Saturday, November 04, 2000 2:07 PM
To:     [log in to unmask]
Subject:        Re: One Big Day

ANEE
I certainly don't want to discourage you from being independent. But I want
you to think about things that could make your life and spasms easier. Have
you thought of hiring somebody to help you with cooking, shopping and
housecleaning? I think I would have my BA if I had had that kind of help.
But
as it was, I was doing everything and was often burnt out. I quit school
every other semester.
when you are going through so much physical stuff, perhaps it is a good
ides
not to volunteer for extra things like the ski program.

Mag