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Subject:
From:
Charles Darr <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Fri, 17 Sep 1999 07:44:56 -0400
Content-Type:
text/plain
Parts/Attachments:
text/plain (23 lines)
>I personally think Alex's (my own boy's name, BTW) progress is wonderful.
>The docs don't feel "he's worth" treating aggresively?  Wow!  What
arrogance
>on their part.  Is he going to the clinic at U of M?

Yes he goes to UM..depends on which clinic you're talking about.  Along the
years we've gotten rid of the doctors who didn't take our concerns seriously
or blamed me for Alex's medical crisis' ( one actually had it in a report
that I refused to give Alex a certain medication despite the fact that
Alex's pedi had determined  Alex had an allergic reaction to it.  The same
report stated Alex was being released afrebrile and in good health when he
had 103 fever and partially collapsed lung...)and gotten a good team that
listens and communicates well, so over all are very pleased with the care he
now recieves at the U.  Being thrown into the ER care of ALex's early yrs
was very shocking and and I was raised to be a "good little girl" and not
talk back.  That has definetely changed although I still end up shaking when
I go nose to nose with the docs...still trying to figure out why I need to
justify myself when I "win" the arguements.
Joanne
>
>-Kyle
>

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