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Subject:
From:
Chester Worwa <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Mon, 23 Dec 2002 10:17:07 -0800
Content-Type:
text/plain
Parts/Attachments:
text/plain (65 lines)
I tried it for my arm and it made things worst for me.
 I basically went on my own for things to help with my
arm and it works better.  Dr.'s know nothing in my
opinion.

--- Kathy Salkin <[log in to unmask]> wrote:
> That's just it.  I honestly couldn't see myself
> going through it all (even for
> a pump) if I'd already improved some, and then had
> it done, and had to go back
> several times a year for infusions of the botox into
> the disc attached to the
> pump.  Too time-consuming and too nebulous for me to
> seriously consider.  And
> as my neuro said, it doesn't work in a lot of cases
> anyway.
>
> If it works for people, great!  But it's not for me
> at this time.
>
> Kat
>
> On Mon, 23 Dec 2002 09:13:09 -0500 "Cleveland, Kyle
> E."
> <[log in to unmask]> wrote:
>
> > That's what all my research turned up--Botox is
> > not a panacea and the
> > effects don't last long.  I was hoping that
> > Ken's neuro had some news about
> > Botox that I hadn't heard.  Ken, are you having
> > a single injection, a series
> > of injections, or are you having a pump
> > implanted?
> >
> > -Kyle
> >
> > -----Original Message-----
> > From: Kathy Salkin
> > [mailto:[log in to unmask]]
> > Sent: Monday, December 23, 2002 9:10 AM
> > To: [log in to unmask]
> > Subject: Re: Ken's procedure; was RE: holiday
> > greetings
> >
> >
> > Thought you were already investigating the
> > possibility of botox?  If not,
> > then
> > you should.  It's not in the books for me (yet)
> > because my surgery eased up
> > the spasticity and it's not so bad.  It'll
> > never go away completely, my
> > neuro
> > says, not even with botox.
> >
> > Kat
> >


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