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St. John's University Cerebral Palsy List
Date:
Thu, 14 Oct 1999 09:42:39 -0500
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Hi Elaine,
I missed the first part of this discussion (or I don't remember it).  (I'm
way behind on my E-Mail.)

You might not see her play hopscotch outside of her wheelchair.  What's
wrong with asking to people to help her go to the bathroom at friends'
houses ?

Kathy





----- Original Message -----
From: Elaine Taylor <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, September 13, 1999 6:19 PM
Subject: Re: New Member


> Hi, yes, I could wait, however, I feel that she has missed out enough of
her
> childhood.  I want to see her play hopscotch (out of her wheelchair), swim
> independently and than be able to stand in the pool when she's tired of
> swimming.  I think about when she's a teen and someone asks her to a
> sleepover and she wouldn't be able to go because she can't stand on her
own
> to be able to go to the bathroom independently.  BTW, the doctor has told
me
> that this will work 100%, no ifs and's or but's.
>
> We were discussing it tonight at dinner, and it kills me that I have to
make
> this decision without her support, but I feel that as a parent, I must
make
> decisions that will impact her future.  She's allowed to make decisions as
to
> if she wants to wear her TES at night or not, and if she wants to do
therapy
> at home or not, but this is to important of a decision to leave up to a 7
> year old.
>
> Elaine
>

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