Cindy- another thought- you know as you fall asleep you sometimes startle-
look up & it ends--Well CP kids are not always aware where in space they
are- or able to stop that falling sensation--Sarah has that problem..and is
sure she is "falling up to the ceiling"  I can tell you at 80 lbs. she is
not- and at age 11 she will laugh about it- but not as it happens as it
scares her...sometimes she doesn't open her eyes but is screaming--  She
sleeps with me- so most of the time- if I roll her on her side & hold her it
will end fast--Joy
----------
>From: Anee Stanford <[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: (no subject)
>Date: Tue, Sep 28, 1999, 2:51 PM
>

>Dear Cindy-
>
>The usual rule --if there is a usual rule in all of this--concening
>spasticty/spastic CP at night is that there is actually less spasticity at
>night/when sleeping.  This is one reson that TES is used at night because
>spaticity is less durring sleep.  The same is also true --usualy-- of
>athetoid CP--that there is less uncontrolled movement at night/when sleeping.
> Of couse we all know that there are no "rules" that hold all the time in any
>one case of cerebral palsy no matter what type.
>
>It could be something elce that you can not determin besides the CP
>(something as simple as bad dreems or maby she is just going through a
>"stage", or a undetected medical problem not related to CP)  or it could be
>the CP, after all Lizzy at this stage probably dose not have adaqute
>vocabulary to tell you exactly what is wrong (I am assuming that she can
>talk--if she can't ignore what I just said).  Have you talked with her
>peditrition about these lastest developments?
>
>Yours,
>
>Anee Stanford
>Webmaster of CPIC
>http://www.geocities.com/aneecp/CPIC.html
>
>In a message dated 9/28/1999 12:15:34 AM Central Daylight Time,
>[log in to unmask] writes:
>
><< Hi all.
> I have a question for any and all of you, As some of you know, my daughter
> Lizzy Jo is 20 mo and has mild spastic CP.  Hopefully this does not sound
> stupid or really dumb.  But I was wondering...... When you are sleeping ...
> can or does the CP cause pain( tightening up....)?  She use to sleep through
> the nite, but when she hit a year old, we have periods where she wakes up 3
> or 4 times a nite.  She has all of her teeth so it can't be that.... alot of
> the time its her cry, like shes in pain.  We are in one of these modes now,
> so out of desperation to try to figure it out, the other nite gave her a dose
> of motrin before bed and she slept straight through, not wanting to drug this
> poor child all the time, this question acured to me.  have asked her docs and
> therapist this before, but was not satisfied with answers, Doc said no( the
> same ones that it took 6 months to convience something was wrong) and the
> therapist said she didn't know.  So I'm now asking the experts.(gigggle)  Any
> ideas??
> Thanks
> Cindy Bushnell and Lizzy Jo >>
>