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Reply To: | St. John's University Cerebral Palsy List |
Date: | Tue, 2 May 2000 14:40:21 -0400 |
Content-Type: | text/plain |
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actually, deborah, if you did not need to vent, you would be very much
unusual. you have been through so much.
-----Original Message-----
From: Deborah [mailto:[log in to unmask]]
Sent: Tuesday, May 02, 2000 5:34 PM
To: [log in to unmask]
Subject: We are at it again !
Well, I just got the call from the GI doctor's nurse, the results of the =
liver biopsy finally came in. All she could tell me was that somewhere =
in time Zachary had received injury to his liver. Where, when, why, and =
how cannot be answered at this time. Now he has to get an ultrasound of =
his liver, the nurse mentioned something about a floater ???, next =
Friday. I guess they are concerned that the blood is not flowing =
through his liver properly. Again I only have questions with out =
answers. Any suggestions? And how can I convince these doctors to look =
for possible mito or a metabolic condition of some sort before further =
damage is done to this boy. As time progresses I am feeling my boy is =
slipping away from me and I will not get to see him growing up. =
Yesterday I dreamed of his funeral, is that awful or what ? Why can't =
they just give me some answers ? Is he going to make it to kindergarten =
so I can fight with the teachers or not? =20
Sorry for venting and getting off the subject, but as most of you know =
this year has been very difficult for us so far as Zachary's health is =
concerned.
Thank you for reading and God bless you all.
Deborah mom of 4
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