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Subject:
From:
David Spencer <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Mon, 27 Sep 1999 14:01:46 -0700
Content-Type:
text/plain
Parts/Attachments:
text/plain (40 lines)
Dear Gerry and Dianne Adams -

In response to your posting and questions: Every parent has their own limit
for mental and spiritual stress when trying to improve the quality life of
their children. I believe you have to weigh the benefits versus the strain it
puts on your family and ask yourself three questions: "Am I doing the right
thing?", "Is it helping my child?" and "Can my family bear the load?". I know
that to improve the quality of life for my children, the search for better
treatments would be continual, the expendature of my personal energy would be
exhaustive, and the amount of money I pay for treatment would be immaterial. I
hope this perspective helps.

Also - If you are interested in persuing information about how other CP
children have benefitted with Hyperbaric Oxygen Therapy, please feel free to
e-mail me or call me using the contact information below.

Sincerely,
David Spencer
Home Ph: 815-439-7713
[log in to unmask]


Gerry and Dianne Adams wrote:

> -----Original Message-----
> From: Magenta Raine <[log in to unmask]>
> <snip>
> who else could know what it's like to be
> >dragged to pt, st, or ot after school?
> <snip>
>
> My would-be toddler has CP, and he has a busy schedule of doctor's visits,
> PT, OT, and Infant Stim/ST.  My question is, how much is too much?  It
> already feels like we're on a treadmill.  Evan strenuously objects to much
> of his PT, but I'm chalking that up to a precocious start on the terrible
> twos.  How would you advise your parents, if they had it to do again?
>
> Dianne
> Mom to Reese 6 nda and Evan 17 mo spastic diplegia fundo gtube

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