From: joan m wallyn <[log in to unmask]>
Hi -- Your daughter's condition sounds similar to mine. I had monthly PT
appts growing up, but these were followed up with intensive work at home.
My father and mother supported and challenged me the whole time. I
still do PT daily here at the house with monthly monitoring by a PT. I
would have to say that I am fairly functional. Live independently, drive
(car is modified) and have a FT job. Hope this helps. JMW
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