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Date: | Sun, 30 Jan 2000 22:06:05 -0500 |
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<<Disclaimer: Verify this information before applying it to your situation.>>
Hi to all my new celiac friends,
Thank you so much for all the response about which Support Groups you use.
I had 60 responses! Most everyone suggested you get involved in a local
support group and I have since found one about 2 hours from me. I plan to
be in touch with them. The lady in charge of the group has been very
helpful.
In addition to the three groups I asked about, some of you gave helpful
information about some additional resources. Please find the summary
(which I hope isn't too long) below:
1) CSA/USA - By far this group got the most votes. It is a national group
and has over 150 chapters in the USA. The group publishers a newsletter
and a book of safe food can be purchased for $8.00. The group also holds
an annual conference. On the other hand, some thought their material to be
outdated and the group to be over-cautious
The address is: CSA/USA
PO Box 31700
Omaha, NE 68131
2) Celiac Disease Foundation ranked 2nd. It also publishes a quarterly
newsletter. Some folks felt it was more concerned with people in its
location.
The address is: Celiac Disease Foundation
13251 Ventura Blvd., Suite 1
Studio City, California 91604-1838
3) TCCSG was 3rd. As a part of its membership, you get a shopping guide
listing safe foods. If you don't want to join, you can still buy the book
for $10.00. They also publish 8-9 newsletters each year (20pp.) The
membership is pro-rated throughout he year. If you don't want to join, you
can still get their newsletter at
http://www.enabling.org/ia/celiac/#nws1
The address is: TCCSSG
34638 Beechwood Street
Farmington Hills, MI 48335
4) GIG - Gluten Intolerance Group
15110 10 Ave. SW
Suite A
Seattle, WA 98166
This group produces a quarterly newsletter and product list. They also
have a wonderful annual camp for children.
5) Gluten Free Living Newsletter by Ann Whealan was also mentioned - 6
issues $29.00
Address: Gluten Free Living
PO Box 105
Hastings-on-Hudson, NY (no zip given)
You can write to her at [log in to unmask] or go to her Website
http://www.celiac.com/contacts2.html#0
6) The INTERNET was sited by some to be the best and cheapest place for
information
http://www.geocities.com/
Gluten free food site http://www.glutenfreegrocery.com/
To find a local support group: http://www.enabling.org/ia/celiac/
7) Sully's Living Without Magazine - 4 magazines for $16.00 - highly
recommended PO Box 132 Clarendon Hills, IL 6054-013
Back issues also available
8) A couple of books were recommended: Against the Gain by J.P. Lowell
and a drug guide form Stokes Pharmacy in N. J. for $19.00 1-800-362-7466
9) A newsletter devoted to dining and travel was also listed
Bob & Ruth's Gluten Free dining and Travel Club
22 Breton Hill Rd.
Pikesville, MD 21208
9) And lastly, this listserv was listed as a great support and I agree.
The Archive Lists contain lots of information and if read frequently, can
help one stay up to date on issues.
Thanks again for all your help. Each time I log on to my email, I know I
will learn something new from my celiac friends. I am so glad I found you
guys!!
Betty in Ohio (near Cincinnati)
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