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Subject:
From:
Nicole Richman <[log in to unmask]>
Date:
Tue, 12 Oct 1999 14:40:04 -0400
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<<Disclaimer: Verify this information before applying it to your situation.>>

Hello, I have just joined your mail list and would like to see if anyone
who reads this has had a situation such as ours.

My 2 1/2 yr old daughter was just diagnosed with Celiac 3 wks ago...following
severe anemia caused by internal bleeding in her lungs.  Other than the anemia
she has no other classic symptoms of Celiac.  Right now she is diagnosed
with CD
and IPH - Ideopathic Pulmonary Hemosiderosis.  Our specialists have never seen
this before, and neither have the ones from Boston who came in to give us
second
opinions.  Is there anyone else out there with this scenario???  Any info
would
be GREATLY appreciated.  We are on the GF diet, and having her blood levels
checked regularly...but it is a game of waiting to see if the diet will
prevent
another bleed, or NOT!!  Thank you in advance!  Nicole Richman

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