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Hi
I sent a mail a while ago requesting the names of paediatric experts
in celiac. Below are the names I received. Like many we are in the
problem of an undiagnosed child who has all the classic symptoms. It
is very frustrating. Thanks to all who replied. This list has been a
great support.
Hope this is of some help to others.
Donal Dunne (Waterford, Ireland)
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Dr. Sef (sp?) practices in the San Diego area in California. From
what I have been told, he is one of the leading pediatric GI doctors
when it comes to celiac disease
There is a specialist in Salt Lake City, Utah, USA, at Primary
Childrens Hospital - Linda S. Book. (801-588-3370). There are three
Pediatric Gastroenterologists there, and Dr. Book is doing some
research specific to Celiac Disease
The following doctor got a number of mentions and was very helpful
over the Web. Dr. Aleesio Fasano in Baltimore ,Maryland US is a world
famous pediatric specialist i celiac Ph. 410-328-0812
Dr. Joseph Murray at Mayo Clinic in Rochester Mn. He is not a
pediatric gastro.
see a Pediatric Gastroenterologist by the name of Robert Wyllie, MD.
Phone number is 216-444-2237
Gary J. Russell, M.D. is from Massachusetts General Hospital. And
Richard J. Grand, M.D. is from New England Medical Center. A
countryman of yours also spoke; Ciaron P. Kelly, M.D. is from
Deaconess Medical Center and Harvard Medical School, but I don't think
he specializes in p(a)ediatrics.
Thomas Self, M.D. - his telephone number is (619) 565-4415. His
address is 7930 Frost Street, Suite 302; San Diego, CA 92123
Stuart Berezin, Westchester County Medical Center - Valhalla -
914-594-4610.
Phillip Kaslow - at Babies' Hospital, Columbia - 212-305-5903.
Conrad Gilliam, a geneticist, is doing the genetic research at
Columbia in collaboration with Peter Green, an adult
gastroenterologist and expert on CD.
He is looking for multiple family members with CD. I don't have Dr.
Gilliam's
phone number, but Dr. Green can be reached at 212-305-5590
The Children's Hospital in Boston has wonderful experts.
Dr. John Kelly in Des Moines, IA USA
Dr. Michael N. Marsh at Hope Hospital, University of Manchester?
Dr Li at Children's Hospital in Columbus, Ohio USA that is a pediatric
gastroenterologist
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