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Subject:
From:
"Denise D. Goodman" <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Sun, 16 May 1999 09:13:56 EDT
Content-Type:
text/plain
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text/plain (16 lines)
Dana I'm glad the trial went well.  Good luck on this endevour.  Personally,
I've been decreasing my Baclofen.  Over the past two weeks I've slowly gone
down from 60MG to 40MG.   I'm only decreasing by 10MG daily for a full week.
I'm doing this on my own.  The doctor will probably yell at me when I go in
for a check-up.  With the added Ativan, I'm still doing better even though
I've been decreasing the Baclofen.  It will probably take me another month or
longer to see if I can get off of Baclofen altogether.  I know it is very
dangerous to decress or increase this medication and I'm being careful.  I'm
highly tuned to my body and maybe I'll need to stay on some Baclofen, but I'd
like to see what my tolerance is for the lowest dosage.

I'm happy you had good results.  Be careful with the secondary insurance.
Just make certain that they don't consider the Baclofen treatments a
"pre-existing" condition.  I'd hate to see you sign up and pay for this
insurance only to discover they won't cover the pump.  - Denise.

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