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From: | |
Reply To: | St. John's University Cerebral Palsy List |
Date: | Wed, 6 Oct 1999 15:55:35 -0500 |
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Hi Anee,
How do you over come the accepts of Cerebral Palsy ? Wow! you volunteer for
people that have disabilities and you have Cerebral Palsy and seizures.
Yours
Kathy
----- Original Message -----
From: Anee Stanford <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, September 16, 1999 4:30 PM
Subject: Re-introduction
> Hi Everyone-
>
> I thought it might be a good time to introduce myself again as I have been
in
> a more lurking phase of particerpation on the list for the past several
> months and have become once again an ative member these past few weeks. I
> have belonged to the c-palsy list since about 1994. This is mainly for
the
> binifit of the newer members. Please bare with me as this is some what
long.
>
> My name is Andrea Stanford but I go by Anee. I am 20 years old. My
family
> and I have 2 greyhounds that we adopted from a greyhound rescue
orginization.
> I volenteer with the orginization most weekends. I am curently waiting
to
> be accepted as a transfure student to Idaho State University (hopefully).
> Sincce I graduated high school in 1997 I have been going to Collin County
> Community College in Mckinney TX were my mom and dad live.
>
> We lived in fairfax county va near washington dc when I was in middle
school.
> I went to Holmes middle school which is a 1 floor school in near
annandale
> and alaxandria va. It is home to the countys physical disabilities
> department for middle schoolers. I was mainstreemed there in the normal
> classes as I was throught school. The diffrence was there were about 15
kids
> in the PD department who were mildly to severly disabled. Of these 13 of
us
'> had CP and of those 13, 4 of us were fully mainstreemed, and the rest
> partialy mainstreemed. Since 13 of us had CP I learned alot about the
> diffrent affects of CP and how to overcome these. This was probably the
best
> school experience of my life because I learned so much about deversity
(noth
> va is very diverse--we had signs in 6 languages at the school) and about
> disability and especially CP because of that concentrated CP population.
>
> Also when we lived in DC I volentered in the summers at a school for the
> severe and profoundly handicapped...these were more of the mental-physical
> type disabilities---very sever nurological dammage beyond diagnosis and
> autism and such. At the school I learned about feeding people, GI tubes,
> physical and occupational therapy teqniques, speech therapy tequniques
etc.
>
> We then moved to Dallas texas area and that's were I went to high school.
I
> did not rally like high school because I was the only one with a physical
> disability, just like in elementry school. There was one other girl in my
> high school who was partialy blind and we are good friends. I got through
it
> ok. I can't say I would ever want to do it again thouh. :)
>
> I have ataxic and athetoid CP. I use a manule wheelchair or electric
> scooter for going long distances like school and shopping. The use
controll
> of my hands espically my left is somewhat limited. I have slight speech
> imparment. I have difficulty reading small print because it is hard to
stay
> still enough to be able to read. I have a history of seizures and am on
> medication for that but I have not had one since I was in 3rd
grade--however
> every time I go off it for long enough I end up having one (that's what
> happened in 3rd grade...I've been taken off it 3 times only to be put back
on
> so I just stay on).
>
> I joined the C-palsy list in about 1993/4 and have been with it through
the
> goood, the bad, and the ugly (some of the older members will know what I
am
> refuring to :-) ).
>
> In 1995 I started my website cerebral palsy info central or CPIC. I try
to
> make the website have inforrmation not just for people who are intrested
in
> "what is CP" [i do have that on there]--like all the other web sites--but
> information that people with CP can use. When I started CPIC there was
not
> much information on the net about CP. On my website I try to provide a
place
> with information not just for parents of kids with cp but for all of us
who
> are adults with CP, who are kids with CP, who are caregivers. I have
tried
> to raise awarness that people with CP do not just stay kids forever, or do
> not just not have CP anymore when they hit 13,--which is something that
the
> medical comunity has not quite caught up with. Anyway I try to provide
> something for everyone including adult with CP.
>
> Well now all you newer members know something about me. If you would like
to
> learn more you can vist the second url under my name.
>
> Yours,
> Anee
> http://www.geocities.com/HotSprings/Sauna/4441/CPIC.html (CPIC)
> http://www.geocities.com/CollegePark/Lab/7132/about.html (My homepage)
>
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