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From:
Donal Dunne <[log in to unmask]>
Date:
Tue, 6 Apr 1999 13:52:46 -0400
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<<Disclaimer: Verify this information before applying it to your situation.>>

     Hi

     I sent a mail a while ago requesting the names of paediatric experts
     in celiac. Below are the names I received. Like many we are in the
     problem of an undiagnosed child who has all the classic symptoms. It
     is very frustrating. Thanks to all who replied. This list has been a
     great support.

     Hope this is of some help to others.

     Donal Dunne (Waterford, Ireland)

     ---------------------------------------

     Dr. Sef (sp?) practices in the San Diego area in California.  From
     what I have been told, he is one of the leading pediatric GI doctors
     when it comes to celiac disease

     There is a specialist in Salt Lake City, Utah, USA, at Primary
     Childrens Hospital - Linda S. Book. (801-588-3370).  There are three
     Pediatric Gastroenterologists there, and Dr. Book is doing some
     research specific to Celiac Disease

     The following doctor got a number of mentions and was very helpful
     over the Web. Dr. Aleesio Fasano in Baltimore ,Maryland US is a world
     famous pediatric specialist i  celiac Ph. 410-328-0812

     Dr. Joseph Murray at Mayo Clinic in Rochester Mn.  He is not a
     pediatric gastro.

     see a Pediatric Gastroenterologist by the name of Robert Wyllie, MD.
     Phone number is 216-444-2237

     Gary J. Russell, M.D. is from Massachusetts General Hospital.  And
     Richard J. Grand, M.D. is from New England Medical Center.  A
     countryman of yours also spoke; Ciaron P. Kelly, M.D. is from
     Deaconess Medical Center and Harvard Medical School, but I don't think
     he specializes in p(a)ediatrics.

     Thomas Self, M.D. - his telephone number is (619)  565-4415.  His
     address is 7930 Frost Street, Suite 302; San Diego, CA  92123

     Stuart Berezin, Westchester County Medical Center - Valhalla -
     914-594-4610.
     Phillip Kaslow - at Babies' Hospital, Columbia - 212-305-5903.

     Conrad Gilliam, a geneticist, is doing the genetic research at
     Columbia in collaboration with Peter Green, an adult
     gastroenterologist and expert on CD.
     He is looking for multiple family members with CD.  I don't have Dr.
     Gilliam's
     phone number, but Dr. Green can be reached at 212-305-5590

     The Children's Hospital in Boston has wonderful experts.

     Dr. John Kelly in Des Moines, IA USA

     Dr. Michael N. Marsh at Hope Hospital, University of Manchester?

     Dr Li at Children's Hospital in Columbus, Ohio USA that is a pediatric
     gastroenterologist

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