Subject: | |
From: | |
Reply To: | St. John's University Cerebral Palsy List |
Date: | Tue, 7 Mar 2000 12:02:31 -0600 |
Content-Type: | text/plain |
Parts/Attachments: |
|
|
There is a Personal Care ListServ.
----- Original Message -----
From: - Joy - <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, March 06, 2000 8:42 PM
Subject: Advice Needed
> For those of you that don't know me, I'm 16 with spastic diplegia CP. I
> need help with bathing, dressing, transferring, and other such things. My
> parents handle all of my care themselves. My dad ends up doing the vast
> majority of it, simply because of my height and his strength. I'm worried
> about the effect this is having on my parent's marriage, and also on my
> parents. They have no time for themselves, and no time to pursue their
own
> interests. I love them, and I don't want to be a burden. Does anyone
have
> any suggestions as to how to get them to consider getting an aide to help
> with caring for me? I've mentioned it, and they always say that it's no
> problem, and that they do it from love. I know that's true, but what they
> want to be able to do and what they can psychologically and physically
> handle are two completely different things. Does anyone have ideas as to
> how I can approach this and help them, without making them feel useless or
> guilty? Thank you so much!
>
> ~Joy~
> [log in to unmask]
> http://www.geocities.com/joy0823
> "Never underestimate the power of stupid people in large groups."
>
|
|
|