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Subject:
From:
Patrick Meyers <[log in to unmask]>
Date:
Sat, 12 Jun 1999 01:37:37 EDT
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<<Disclaimer: Verify this information before applying it to your situation.>>

<<Dr. Joe Murray, Mayo Clinic is considered by me (a celiac for a long time)
as a leading expert on celiac disease.

There are many others.  All the 4 national groups have a board of
gastroenterologists who act as Medical Advisors who are celiac experts.

Have you joined any of the 4 national organizations and received the vast
source of information from them.  They are:

CSA/USA
P. O. Box 31700
Omaha, NE  68131

Gluten Intolerance Group
15110-10 Avenue SW - Suite A
Seattle, WA  98166-1820

Celiac Disease Foundation
13251 Ventura Blvd - Suite 3
Studio City, CA  91604-1838

American Celiac Society
Dietary Support Group
59 Crystal Avenue
West Orange, NJ  07052

They are all excellent sources of good medical info in addition to the Celiac
List.>>

<<Also you might want to contact Dr. John Shaffner at Rush Presbyterian
Hospital in Chicago.  He is supposed to be an authority on CD.

You could also contact CSA for a list of doctors who can read biopsies.   My
doctor is Dr. Blades from Fairview Hospital in Cleveland, Ohio.  He is a
"nice" guy who would probably take the time to talk to you about it.  Sorry
I don't have his #, but his first name is Edmund.  He knows what to look for
in a biopsy.>>

<<Patrick,  As I understood the procedure when I had my biopsy done,  the
samples are sliced and put under a microscope for examination of the villi,
and photos are made of the sample as is sits under the microscope. The real
inside story of Patrick, News at 11!  This "sample" slide should be good for
about 50 years or so, until the emulsion on the film deteriorates.  The
actual sample itself is burned at the end of the day.>>

<<Prometheus has organized a network of "Centers of Excellence in GI
Pathology,"  and can recommend GI pathologists who can provide expert
interpretation of your biopsy specimens.  You are wise to get these valuable
tissue specimens under the microscope of specialists who see nothing but GI
biopsies all day, and who have developed a thorough understanding of
diseases of the GI tract, such as Celiac disease.  You can learn more about
these services at www.prometheus-labs.com.>>

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