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Date: | Wed, 7 May 2008 06:39:31 -0400 |
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Our allergist in Texas several years ago recommended we try this for our
anaphylactic (to milk) daughter who was only 8 at the time. My
understanding is that it blocks the histamine reaction completely. We did
not take that route for many reasons: it was so new, un-tried and very
expensive, worries about effects on developing bodies, and a general
nervousness that God gave us a histamine reaction for a good reason and I'm
not sure I wanted to ticker with that until I understood it. If you decide
to do it, please keep the list posted.
Cathy Cralle Jones
(NC)
----- Original Message -----
From: "Weavre Cooper" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, May 06, 2008 3:44 PM
Subject: Xolair--anyone know anything?
> Hello, everyone,
>
>
>
> My allergist suggested I look into whether I'd want to try Xolair
> (Omalizumab), and said that if I do, he'll undertake the apparently
> necessary series of arguments with my insurance company to get the
> expensive
> drug covered. I've read the patient information brochure and the
> prescribing
> information, which are helpful - but also are not quite informative
> enough.
> I have a severe dairy allergy, with anaphylactic response triggered by
> inhalation or ingestion, and dermatologic response triggered by contact.
> My
> allergy is much better controlled than it once was, but because I refuse
> to
> stay hidden away at home and the world is littered with dairy dust, I have
> an anaphylactic episode about once every 4-6 weeks or so - and I can't
> take
> epinephrine.
>
>
>
> Has anyone on this list tried Xolair? What are your personal experiences
> with it, good or bad? What have you heard from others? Has it succeeded in
> preventing allergic reactions? What side effects have people experienced?
>
>
>
> Thank you in advance for anything you can share,
>
>
>
> Weavre Cooper
>
>
>
>
>
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