<<Disclaimer: Verify this information before applying it to your situation.>>

Happy Holidays Everyone,

Here are most of the replys I received about neuromas.  After all of this, I
don't know for sure if I really have a neuroma.  Mine is on the plantar area
of my foot which doesn't seem like the normal place.  I'm going to a specialist.

Suzanne

>>I had a neuroma in my foot and huge pain.  The doctors thought the neuroma
>>was causing the pain, so it was taken out.  You don't know what pain is
>>until you have a nerve removed!!!!!!!!!
>>
>>Anyway, the original pain never got better.  It turned out the pain is
>>caused because one of my foot bones is in the wrong proportion to the rest
>>of the foot.  So I have to wear a little bump inside my shoe to lift up the
>>front part of the foot.  Then, no pain.  I could have done THAT without the
>>surgery.
>>
>>So be sure you know what you are doing, and why, if you decide to do
>>anything about this neuroma.
>
>
>>I believe I have a Morton's Neuroma, if this is what you are referring to.
>>It specifically affects the nerve between the metatarsal bones of the 3rd. and
>>fourth toes. I don't know if there is a connection with Celiac Disease. I have
>>to wear shoes (sometimes rather ugly ones) that are square or very round toed.
>>I love summer because I can wear sandles and it feels much better.
>>In general, they don't like to operate to remove the neuroma unless absolutely
>>necessary. Let me know if there is a connection with CD.
>>
>>
>>I have had neuromas on both feet and in my case they became very painful.  I
>>eventually had surgery to remove them.  They're a type of nerve tumor so the
>>nerve can get inflamed and cause great discomfort.  I felt like I was walking
>>on rocks and my feet would burn.  I still experience some discomfort but
>>nothing like it was before my surgery.


>>Yes I have neuromas--have to wear orthodics to relieve the pain.  It
>>started out with just a little numbness, but after years went to serious
>>pain.  Had to give up 20+years of running.


>>I posted a similar question to the list about 1-1/2 weeks ago. My podiatrist
>>wanted to give me some cortisone injections that may or may not help. Then
>>after he gave me up to 3 he would do surgery to remove the inflamed nerve.  I
>>was asking the list if the medication in the Novocain and cortisone were GF.
>>I had several responses saying the shot was very painful but the surgery was
>>okay. One person said the shot helped and was not too painful. No one said
>>whether the medication was GF. I have decided to try some inlays or insoles
>>in my shoes to see if that will relieve the pressure. I'm not sure after that.


>>I have had neuromas on the ball of my feet for many years.  One is worse
than the other. I have used special orthodics for years.  The podiatrists
all want to remove them, but I do just fine with orthodics.  I have
pre-plantar facitis condition (pre bone-spur condition) too, but after
spending $600 for orthodics to cure both problems, I am using my old
orthodics plus a heel wedge.  I'm fine.  It's important for me to do foot
stretching exercises.
>>
>>These conditions have no relevance to CD, I'm sure.


>>I had two neuromas on the bottom of one foot, and I had them surgically
>>removed about eight years ago.  That foot continues to be pain free.  My
>>other foot has at least one neuroma, but it isn't nearly as bad (painful)
>>as the other foot was, so I haven't done anything about it.


>>Wearing wide shoes so you don't pinch those nerves any more than necessary
>>is a big preventative step toward warding off surgery.  Also your
>>podiatrist might fit you with a special support to help spread that part of
>>your foot, again to relieve the neuroma and hopefully keep it from getting
>>worse.


>>Surgery takes care of the problem, if you have a very good surgeon, but
>>it's nice to be able to just manage the neuroma so you don't have to have
>>surgery.


>>Cortesone (steroid) shots can help to alleviate the pain somewhat, when it
>>gets very severe, but you are limited to three shots within six months, and
>>frankly, my neuromas were so bad, the shots didn't help much.


>>For my foot that still has at least one neuroma, I just make sure my shoes
>>are wide enough (which means double wide) and Very Comfortable.  Any shoe
>>that pinches gets given away immediately.


>>  I saw your message on the celiac list.  Morton's Neuroma is a
>>common problem in the ball of the foot, between the toes.  Lots of people
>>have them. For some people, they tend to get larger and sometimes require
>>treatment.   I had one and finally went to the podiatrist.  Tried Advil and
>>even injections into the area of the neuroma--this would give temporary
>>relief.    After a few months it was so painful I decided to have it
>>removed.  No more pain!!!  The only negative after the surgery was having
>>to wear a special shoe for a few weeks.  No pain.  Much better.  Now I can
>>wear normal shoes, exercise without pain, etc.
>>Wearing tight toed shoes or high heels makes it worse. This isn't medical
>>advice--only my experience.  I was able to find a lot of opinions and info
>>at this web site:   http://www.hotbot.com/
>>In the search box, just enter Morton Neuroma and you'll see a lot of info.


>>I have a Neuroma between two toes on my left foot. It was diagnosed by a
>>Podiatrist.  After two previous Doctor visits and an x-ray.  The woman
>>Podiatrist that discovered it, said "Hasn't anyone else dis


>>I have a Neuroma between two toes on my left foot. It was diagnosed by a
>>Podiatrist.  After two previous Doctor visits and an x-ray.  The woman
>>Podiatrist that discovered it, said "Hasn't anyone else discovered this
>>yet!?" It was so evident to her. I then had three cordisone shots and
>>started to wear wider shoes and low and behold it hasn't bothered me since.
>>
>>  Thought this might be of interest to you. I don't think it has anything
>>to do with being a Celiac.    Have a nice holiday.


>>I didn't want surgery either, because my understanding is that then there
>>is numbness which I don't want.  So far the orthodics are evening out the
>>foot pressure and relieving the pain so I can walk (boring) and hike with
>>ease.  Of course orthodics don't fit in dress shoes so it's only for tennis
>>shoes and hiking boots that they fit.  My theory was that eventually they
>>may worsen and I will at that point do surgery.  Insurance with preapproval
>>will often cover orthodics.  Hope you can trip the light fantastic soon!


>>I also have celiac and neuroma on both feet. I tried cortisone
>>shots and they worked great, but didn't last forever.  I now use blue
>>inserts produced by Birkenstock which fit into my walking shoes (but not
>>into dress shoes).  It would be impossible to function without them.


>>I have had three neuroma surgeries and am about to have a forth!   The
>>first two were on both feet and took a very long time to heal as I was not
>>yet diagnosed.  The next was a repeat on the left foot called an amputation
>>neuroma.  The tumor had grown back because they didn't get it all the first
>>time.  Now they tell me I have yet another in a new area in my left foot
>>AGAIN!  I may also have another in the right foot, but that isn't bothering
>>me that much yet.  This has all been in the last five years and I'm pretty
>>disgusted over it as I can't walk in anything but well padded sneakers with
>>orthodic inserts.  I can't wear shoes at all, too painful.  Please post to
>>the list to let us know if this is something common to celiacs.  Hope you
>>have better luck than me.
>>

>>>Yes, had neuroma on both feet.  Had surgery approx. 5 years apart--takes
>>some time to get off crutches and a shoe on but sure beats the pain
>>before--toes are rather numb because they removed the nerve w/the neruoma.
>>Had an orthopedic surgeon do mine but a foot doctor that does surgery can also
>>do.  I would recommend-I waited too long the first time--lots of pain when the
>>neuroma would get caught between the bones!  Remember taking shoe off in
>>public and rubbing my foot-didn't care who thought I was nuts--!  Good
>>luck.


>>  I have neuromas in my feet and have gotten great relief with
>>accupuncture.  They persist however and I am pain free only after several
>>treatments with the acupuncurist.  I go once a week and after 5 weeks, I
>>thought I was cured and got to do aerobics again!  Now it's creeping back.
>>I'm curious what you found out about this neuroma thing and what has helped
>>others.  Can you share with me your findings, I'd really appreciate it.