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Subject:
From:
Kelly & Jordan Geist <[log in to unmask]>
Reply To:
Milk/Casein/Lactose-Free List <[log in to unmask]>
Date:
Mon, 9 Mar 1998 15:55:33 +0000
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text/plain
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Icey5309 wrote:

>  chris has hirshprungs,reflux,failure to thrive,milk protien
> allergy,chronic anemia, and is developmentally delayed. he is hypotonic in his
> trunk and hypertonic in his extremities. I was just wondering are all of you
> thats children are behind on the weight are they also behind on there fine and
> gross motor skills? I have asked if they thought that the reason that chris is
> so far behind developmentally was because he is weak from his nutrition being
> so bad but they have said that they didnt think that the nutrition could be
> the only cause for being so far behind.

Interesting question. Jonathan  (one year old) has been right on target or early
in all of his developmental skills. However, this is NOT the norm I have been
told by his nephrologists. Most ( a lot) of children with chronic renal failure
don't develop well at all and I would assume that it is partly due to
malnutrition (children with CRF don't have great appetites or metabolize food the
same as others). So we have been very lucky so far that he has enough kidney
function to keep him active.

Kelly

> anyways I was just trying to figure
> out exactly how much could be from his nutrition being so bad and how much
> could be from something else. anyways I guess I should stop rambleing I will
> talk to ya later. take care
> angela

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