<<Disclaimer: Verify this information before applying it to your situation.>>

Judith:

I also suffered from a lot of mouth sores and ulcers prior to the celiac
diagnosis. As Bill and Katie said maybe there is a "hidden" gluten
source you are not aware of. Remember in the beginning there is a lot of
information to digest (excuse the pun) and it is easy to miss something.
We all weren't perfect at this in the beginning. It is a learning
process.

You have a lot to manage with type I diabetes and the celiac disease.
My daughter was diagnosed with celiac disease at the age of 10 mos and
diag. with type 1 diabetes at age 7. Ironically, I have a degree in
nutrition, but it is still a lot to manage.

Keep your eye out for a better doctor and hopefully someone will have
some insight into this if you aren't receiving gluten from an unknown
source. I was diagnosed with multiple food allergies, and environmental
allergies prior to the celiac diag. Allergies to other things can
sometimes contribute other physical problems.

Good Luck

Pam

Judith Daley wrote:

> ...I began getting a number of canker sores in my mouth that
> wouldn't go away.  Eventually these canker sores turned into oral ulcers
> and my mouth, lips and face started to swell up....My lips starting
> swelling larger and my mouth lining  started to buckle and become like
> cobblestone.  Under the left side of my bottom lip, a hole develop that
> goes right through.  When I eat or drink anything it starts to "leak".
> I have been to every type of specialist there is in Ottawa, Ontario.  I
> keep hearing the same thing, no one has ever seen anything like this!
> If anyone has experienced anything like this or knows of a similar
> situation, please email me.