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Mon, 27 Oct 1997 04:41:05 -0400 |
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<<Disclaimer: Verify this information before applying it to your situation.>>
Dear List,
I have a daughter (8 years old) who was just recently diagnosed with
Dermatitis Herpetaformis (the skin condition connected with Celiac
Disease). She has been totally gluten free for about a month now and
her rash (which is on her face) is beginning to clear. My question is,
does anyone else on the list have a child with this disease and if so,
how did the rash clear up and how long did it take? For a while it got
worse and I re-examined her diet and thoroughly cleaned her out again,
but then the rash spread from just below her nose, to down below her
mouth on her chin. I am wondering if this is a normal progression of
the rash while it clears, or am I missing even more gluten in her diet.
I have checked with every company about every food that goes into her
body. I could not be more careful unless I took her off everything
except lamb, rice, apples and bananas for the rest of her life. I am
not willing to torture her like that. I would appreciate any input from
anyone with any experience with this disease. She gets some of the GI
symptoms and is definitely suffering from malabsorption syndrome. My
husband and I along with several other people including her teacher have
noticed a dramatic change in her personality for the better. She is
MUCH calmer and cooperative and just as sweet as a kitten. She used to
be very volatile and hyper. She is on a GF multivitamin and mineral
supplement, as well as GF Tums for calcium, GF acidophilus and extra C
GF. She also has a dairy allergy, egg and bean allergy. She is
obviously off these foods too.
Please respond to my private e-mail address and I will summarize for
anyone who is interested in the responses.
Thank you in advance for your input. I am very anxious to help my baby
with this disease when it is an adult, but when it's your child, it's
heartbreaking.
Warmly,
Bev Wahl
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