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Hi
This is my first posting to the list so I hope I am doing it correctly.  I was
biospied diagnoised in Jan '97 and re-biospied in May '97.  The May biopsy
show "60 % regrowth of villi".  I continued to gain weight and feel better
until Sept '97. at which time I had recurrence of symptoms.  My problems
included both sharp, stabbing pain and burning, muscle wasting, joint pain,
confusion, personality changes,  I have lost the ability to tolerate milk,
eggs and I "react" with gas, bloating and pain to most other foods, sometimes,
and other times tolerate them just fine.  I am very carefull not to ingest
gluten (seperate butter, call manerfactors, buy products the the list has
recomended, ect.)  I have seen four Doctors since Nov. but none of them had a
clue.  I finally went to Mayo clinic in Rochester Minnesota on 6/11
(Thursday).  I had an endoscopy, actually I had two because I agreed to be in
a study, so the first endoscopy was done with a new smaller scope with out
anestic, the second one was the old way and they did another biospy.   During
the first endoscopy while I was awake, the Doctor said that I had much
scalloping and a cobblestone pattern with no villi present.  He said this was
typical of untreated sprue.  I have been so very very careful with the diet.
I know that refracatory celiac presents itself with inital improvement on the
diet with recurrence of symptoms, but that is all the info I have been able to
find.  I have not been able to get into the archieves for some reason.  If any
one has any info on refacatory sprue,or any advice please write me soon.  I go
back down on 6/16.  Please excuse the spelling errors, that area of my brain
seems affected.  I also have trouble coming up with the right word at times.
This list has been a God send for me in the amount of usefull info I get and I
appreciate all of you.

Jill in Minnesota