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Date:
Tue, 14 Oct 1997 11:28:35 -0400
Subject:
From:
Donna Lindner <[log in to unmask]>
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<<Disclaimer: Verify this information before applying it to your situation.>>

Thank you to all of you who wrote!  I was not expecting such a response!
Everyone who wrote felt the Dr. was quite insensitive.  I got many
suggestions.

Here are some of the suggestions:

*find a new Dr.
*get a second opinion through the HMO
*try alternative medicine; chiropractors, naturopaths,nutrionists
*try supplements
*print the responses and give them to the Dr.
*some sent web sites
*some shared that they have similar allergies on top of gluten
**most shared that they have had the same reactions from the medical field

All of the responses really helped me.  It was difficult to be told my
coping mechanisms were mentally ill.  My reason for seeing the Doc was
for a work physical, not for GI problems.  She asked me how it was all
going and I naively told her.

Tests I have tried:

*sigmoidoscopy and endoscopy
I allowed this to be done after being pretty strictly gf for a
year.  The GI doctor who performed it didn't see a problem with my
being gf before the test and adamantly told me afterwards to go
eat all the wheat I wanted because I was absolutely not celiac.
He was one of the Celiac specialists at our University hospital.
He also did blood tests which came back negative.  I was not real aware at
the time that you needed to be eating gluten before this test.  There is
no way I can eat gluten to do this test as it incapacitates me.  I would
not be able to work.
*I conferred with a dietician who told me my problems were too severe for
her to be able to help me.  She said if I can't eat the starchy foods that
provide energy there is nothing she can do for me.  I saw her point.
*I saw an allergist who diagnosed me right away with allergic
gastroenteritis.  We tried a couple of meds to no avail and so he referred me
to an endocrinologist.
*The endocrinologist tested for hypoglycemia and left it at that because
that was all my HMO Dr. had approved.  It was negative.
* The HMO Dr. screened me for depression. It came up negative.

All of this has occurred in the last 9 months.  I found out about Celiac
about two years ago, and began the diet. I have been struggling with serious
feeling of deprivation that lead to depressive feelings, so I began
earnestly to seek medical help.

Thing I am now doing:
*I have been seeing a chiropractor for a year now due to a back injury and
he just began adding nutritional counseling to his scope of practice.  He
said something about how the mainstream medical field focuses on
treating pathological diseases and doesn't work on preventing them before they
reach that point.  He seems to think that my intolerances could over time
progress to other more serious problems, at which time the Dr's
would intervene.  We both agree that then is a bit late to start worrying.
He is starting me on some enzymes for digestion, something for the adrenals
and reactive hypoglycemia, and vitamins and minerals
*I talked with the owner of Authentic foods yesterday and thought he was
so kind.  He informed me of some of the products that I can eat that are
without corn, gluten or rice.  It will be so nice to have baked goods,
marinated meats and flavored coffee again. :  ) THANKS to the people who
write about there being such products around.

What to do about a definitive diagnosis?  I am stumped.  I really just
want to rule out anything that can actually be treated such as thyroid,
adrenal or pancreatic problems.  For now I am going to work with the
chiropractor and be happy.  He seems to believe  that even if it is one of
these problems, there is a reason underneath, that will eventually create
a pathological condition.  Better to let the body heal and rejuvenate
itself over time and with assistance.  I guess that is holistic medicine?

Sorry this is long,

Donna

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