<<Disclaimer: Verify this information before applying it to your situation.>>

Fellow List Members -
        I apologize for the delay in my summary.  I teach school and have
spent the last few weeks setting up for a new school year and then the
actually beginning.  Now, it seems things at school  have settled in.
        My consultaion appointment with the internist/gastroentologist is
coming up in the next couple of weeks.  I have also received an internist
recommendation from a local Celiac which I will try to follow-up with
another consultation. If you recall, I have already been biopsy diagnosed
(4/96).
        Here's a list of new doctor questions I have compiled (in no
particular order) from the many wonderful responses I have received from my
post. If you think of other good ones after reading this list, please let
me know.  I've also  included some excellent suggestions from one of our
list members.
        Thanks so much to the many of you who responded!
        Your help and support sure makes Celiac-Life a lot easier!
N :)

NEW DOCTOR QUESTIONS:
1.    How do you plan to monitor my condition?
2.    What experiences have you had working with Celiac Disease?
3.    How many other patients are you presently treating with Celiac Disease?
4.    Do you keep up with the latest info on celiac disease?
5.    Do you  consider it a 'rare' disease (i.e., 1 in 5000)?
6.    Are you aware of the  study to be undertaken at the U of Maryland to
         prove that we have the same incidence as Europe (i.e., 1 in 300 or
         so).
7.    Have you diagnosed CD in patients who do not present with the typical
         symptoms of diarrhea, weight loss, etc?
8.    How will you monitor my vitamin and mineral levels to be sure I am
         absorbing the necessary nutrients?
9.    Do you refer people to nutritionist?
10.   Do you prescribe minerals and vitamins?
11.   How can I reach you if a crisis occurs?
12.   What do you prescribe if I get contaminated (for pain,
         diarrhea etc).
13.   How many cases of Celiac Disease have you personally diagnosed?
14.   Do you plan to do regular blood workups checking for
         minerals, etc.?
15.   Will you be checking periodically for bone density?
16.   Will you require a follow-up biopsy to check on healling of the villi?
17.   What do you plan to use to monitor for the possible side effects of
         Celiac?
18.   What support services can you help me get in touch with and/or use
         personally?
19.   Could I be alergic to wheat rather than gluten?
20.   Was this diagnosis appropriate, or should I rather have had the Biopsy?
         (Where applicable)
21.   Are you aware of internet mailing lists specializing in this condition?
         Would you like more information on how to join them?
22.   Are you interested in reading some of the information I get off the
         internet (either this forum or other sources) to help you keep
         current?


A MEMBER'S SUGGESTION:
   I have found it very helpful to bring some of the excellent info we have
available to us through the www such as copy of Dr. Murray's
presentation which is available on the listserve. It may also help to
bring some of the info from support groups such as GIG or some of the
others. Having some documentation to refer to which is credible may help
during your introduction and discussion.


                                    Nina :)
                         '89FX3/Coupe (SAM)
                                Phoenix,  AZ