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From:
"Joe Murray, M.D." <[log in to unmask]>
Date:
Tue, 23 Apr 1996 10:52:00 CST
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<<Disclaimer: Verify this information before applying it to your situation.>>
 
There has been some questions about whether a celiac patient can have
complete resolution of the intestine on a gluten free diet.  i believe that
they can, Earlier reports of failure to heal really did not necessarily
control for dietary compliance.
 
While reviewing the accuracy of the original diagnosis of celiac dsiease may
be an important exercise when seeing a patient for the first time many years
after the original diagnosis, One should not discount the diagnosis on the
basis of a normal biopsy after years of a gluten free diet.  It may be a sign
of success!!  The first step should be to obtain the orginal records and if
possible the biopsy slides and report upon which the diagnosis was based.
 
## I think it is good idea to get copies of reports at the time of diagnosis
to keep in a personal health file at home or safety deposit box, especially
for children.  One does not know when later in life there would be a need for
records.  This is especially so for a lifelong condition such as celiac
disease.  Many hospitals only retain records for 21 years in the case of
children, and as little as 7 years in adults ( usually 7 years of inactivity)
I frequently am faced with reconfirming a childhood diagnosis in adulthood,
and lack of these records is a problem.  Pathology slides are a different
matter.  These may be retained for up to 21 years in some places ( retrival
may take a while).  Few health care organisations can afford to keep records
and path slides indefinitely.  ###
 
This is not medical advice
Joe Murray

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