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>Is anyone aware of either clinical research or personal experience re: the
>lag time between ingestion of gluten and skin breakout in persons with DH?
>My own experience suggests that it is quite long, perhaps as long as several
>weeks, but I haven't tested this systematically. My dermatologist isn't
>aware of such work either. I am planning to go gluten-free but am trying to
>figure out when it's safe to stop taking dapsone before all the gluten
>consequences are out of my system. Any experience with this you could share
>would be very helpful.
 
Hal,
When I first tried a GF diet after DH diagnosis, I gave up in disgust after
1 month and no improvement. I then went to the library and did
some research and found that it often takes at least 3 months. After being
back on the GF diet for almost exactly 3 months the symptoms disappeared.
Months later I naively decided to see if I was "cured" and resumed a normal
diet. In about 3 months the symptoms returned. Apparently these time frames
can vary from person to person and of course will depend on the
fastideousness of the diet. I am currently 99.9% GF and have no lesions and
require no dapsone. The library reference eludes me at the moment, but I
took great heart in the information when I first read it, especially since
the doctors didn't have a clue how long it would take! I will E-mail it to
you when I find it!
Good Luck!
Roy
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Roy A. Hall, PhD
Senior Research Officer
Molecular Virology
Dept. of Microbiology,
University of Queensland
Brisbane. 4072. QLD
Australia
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