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My son is 23.5 months old and is diagnosed failure to thrive.He hasn't
gained weight since he was 14 months old.He eats a high calorie, high fat
diet,I guess malabsorption is the word.He's been tested for lactose
intolerance-neg,cystic fibrosis-neg,thyroid-neg,lead-neg,metabolic
disorders-neg but with a "generalized heavy pattern of amino acid
urea"-further blood tests revealed nothing.He has also been tested for
genetic diseases like williams syndrome, fragile x and a few others because
he isn't talking yet and had some motor delay.After all that history here's
my quandry-Last week he had endoscopy and they discovered reflux,and non
specific inflammation of the stomach and the duodenum.I was sure we'd see
celiac from the biopsy but she says it's all non-allergic causes.I forgot to
mention that he keeps a rash on and behind his knees that is blistery and
itchy.Ped says eczema,but I wonder about dermatitis herpetiformis.Hubby's
family has history of food allergy-mom=wheat.He's on meds for the
inflammation and reflux(zantac,propulsid,pentaza)for 4 weeks and then we see
gidoc again.Could celiac cause this (or dh) symtomology without "allergy"
showing in biopsy?I figured that celiac was causing malabsorption and leaky
gut and peptides leaking out were acting like neurotransmitters and blocking
language acquisition, causing hyperactivity and interfereing with motor
skills(he's caught up now, was late to walk, had some weakness).He has
protuding abdomen,wasted buttocks and several things mentioned above.Any
ideas?I'm frantic about only treating symptoms though I understand the need
to protect his system while we look.Could it just heal and go away?Thanks in
advance for reading my ramblings, hope someone can make sense of this-
Carolyn Hunnicutt [log in to unmask]