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I have noticed a number of people on the list who are parents of Celiac
Disease children.
 
Are any of these posters Celiacs themselves along with caring for
the child's needs? I imagine that combination would really be a
nightmare. Does the "fuzzy-mindedness" that so many mention as an
adjunct to Celiac interfere with the overall care?
 
I should think these parents would need a special kind of strength. It
would be interesting to read how they set priorities and get everything
done. Could some of these Celiacs, who are also caregivers, give us some
inspiration and understanding into ways to cope? I find all the
"connections" that are associated with Celiac fascinating. I think many
of us could benefit from some insight into coping mechanisms.
 
I have suspicions  about two of my grandchldren. One (age14) has had,
ostensibly, the best of medical supervision (Boston Children's, etc.)
The other(age 4 1/2) is just thought of as a rude, disruptive,
undisciplined child, AT TIMES. The girl who has had so much attention
and money spent on her, has not fared well. She has multiple fractures,
lethargy, and varying diagnoses from Chronic Fatigue Syndrome to
possible Lupus. Neither child seems to come close to being Autistic. I
worry about them. Worry solves nothing. The doctors think my being a
Celiac is "incidental", and of no consequence. The little boy will
probably end up in jail by the Second grade. Strangely, both are very
attractive and socially competent. Who's to know? AMS