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From:
"J. Murray" <[log in to unmask]>
Date:
Mon, 25 Sep 1995 23:01:18 -0500
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<<Disclaimer:  Verify this information before applying it to your situation.>>
 
I sympathise with the post that rails about how people with celiac
disease are told to put up with everything and pay for the priviledge.  I
know several people who have used the americans with disabilities act to
help stress the requirement to accomodate their needs as they would some
who is challenged because of sight, mobility, hearing or other problems.
Other groups have made society pay attention to their problems.  See the
warning labels about phenylalanine on soda cans.
To get type of recognition requires a lot of concerted effort, applied in
the right places and in the right way.  It should start with education
and then force of numbers.  A confrontational approach leads to just that
confrontation and then alienation of the other party.  They may rather
not to deal with the person rather than work a compromise.
It the individual's need to keep well that is the individual's
responsibility but it is in coming together that the individuals can make
life easier for them. Take every opportunity to inform others about
gluten intolerance ( in simple easy to understand terms) and some of
these people may be taking decisions that affect celiacs either in
deciding about some food preparation style, selection of medications etc.
If you are unfortunate to be going into hospital contact the dietitian as
early as possible so she/he can work on your needs.  I think Joe Warren
related the experiences Mary Alice and He had in this regard.
 
Joe Murray

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