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Date: | Sat, 18 Mar 1995 16:30:54 -0500 |
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<<Disclaimer: Verify this information before applying it to your situation.>>
The March 27th issue of Business Week (that is just now reaching the
newstands) has an article on how the large HMOs are beginning to use
databases to manage the diseases that their members have. For example,
Kaiser Permanente has combined all of the data on their 84,000 diabetics
and found that although diabetes is the leading cause of blindness,
15-20% of their diabetic patients aren't getting their eyes checked
routinely. Meanwhile, standard office visits aren't doing enough for
diabetic patients battling complex problems such as obesity and stress,
which make the disease worse. Kaiser plans more agressive eye-screening
programs and may set up patient support groups and more access to
specialist nurses.
As noted in the Sprue-nik Press there is little commerical interest in
CD. There is no money to be made on something that can be controlled by
diet. However, the HMOs *do* have an incentive to find undiagnosed
celiacs as the cost savings to them could be enormous! It is up to us to
convince them to be more proactive in seeking out the condition.
Along that vein I present the following which is part of a Canadian
Celiac Association survey where 1294 questionaires (out of 1937 sent)
were returned (82% biopsy proven). It lists various symptoms and
misdiagnoses for celiac disease.
(1) When asked how many doctors they had consulted about their problem,
25% of 960 biopsy-proven repondents said one doctor, 29% two doctors, 17%
three doctors, 12% four doctors, 6% five doctors, 6% six to 10 doctors,
and 3% more than 10 doctors.
(2) Duration of symptoms experienced by biopsy-proven respondents before
diagnosis of celiac disease:
Range* Respondent
Median Mean SD Maximum No. of Pct. of
Symptom (years) (years) (years) (years) Respondents 960 Total
------- ------- ------- ------- ------- ----------- ----------
Diarrhea 1.9 6.6 11.7 75 774 80.6%
Abdominal pain 2.0 8.0 12.4 65 583 60.7
Gas or belching 2.5 8.4 13.0 74 629 65.5
Fatigue or lethagy 2.0 7.9 12.6 79 688 71.7
Bloating 2.0 7.9 12.4 79 770 80.2
Nausea or vomiting 1.0 5.8 10.9 65 334 34.8
Lack of appetite 1.0 6.2 12.7 70 330 34.4
Skin rash (DH) 4.0 10.3 13.0 57 155 16.1
Headache or migraine 10.0 13.9 13.9 62 204 21.3
* minimum range is one month for all symptoms
(3) Diagnoses of diseases made before celiac disease was diagnosed:
Respondents (%)
Biopsy Proven Not Biopsy Proven
Diagnosis (N=686) (N=145)
--------- ------------- -----------------
Anemia 47% 30%
Stress 45 39
Nervous condition 41 39
Irritable bowel 34 43
Stomach ulcer 23 14
Food allergy 19 32
Colitis 13 23
Menstrual problems 13 17
Edema 9 8
Gallstones 9 10
Diverticulitis 6 9
Dermatitis herpetiformis 4 5
Other 36 39
More complete results were published in their Spring 1993 newsletter.
Reprints available from:
Canadian Celiac Association
6519B Mississauga Road
Mississauga, Ontario L5N 1A6
(416) 567-7195 (800-363-7296 in Canada)
In addition to the misdiagnoses above, gluten has been shown to aggrevate
the following conditions:
autism
asbergers
attention deficit
chronic fatigue syndrone
fibromyalgia
schizophrenia
diabetes
anorexia
If the HMOs could identify and support all of their gluten intolerant
members, the savings to them could be absolutely enormous!!
Don Wiss.
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