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Having signed on to this conference just a short time ago I have found it a
comforting and informative source.  SO, just this a.m.  I thought I would
share how to access this with the GI specialist who diagnosed me...  I was
put on hold while his receptionist explained it to him...when she came back
to me her response was:  "he's not interested."  ....Silence... I held the
phone in my hand in disbelief and just said, "oh, okay".  Within seconds of
returning the phone to its hook, my fingers picked it up again and hit the
redial button.  My response took me by surprise..  I got that frog in my
throat so I could hardly talk and probably hardly be understood.  I was hurt
and furious as I tried to explain to her that what just happened to me felt
like a slap in the face and could she please relay that to Dr. X .  I
explained how when I was diagnosed I received very little information on the
disease, the diet, nutritional concerns, research happenings, pregnancy
concerns, etc...etc..  and that this information is for him to pass on to
his patients.  I don't give a >*$# if he's not interested but his patients
would be!!!

I didn't figure him for a Don Kasarda or Joe Murray type who are helpful by
giving their time and expertise to this discussion group...but his response
just put the icing on the cake to the service I received at my clinic
throughout all of my tests and diagnosis... from being left alone with a
needle in my arm while having blood drawn (and consequently fainting).... to
.... a nurse standing over me like a drill sergeant while I chugged down
barium at 8 am instead of coffee, watching me spit up and not assisting with
getting me a garbage bucket and grabbing me a kleenex...

Anyways...

I've listened and read a lot of what has been passed back and forth on this
network.  Their is a controversy of what should be shared and what
shouldn't.  I am just thankful that you all are out there and we have a
means to be in touch.  It's a difficult disease to have and what makes it so
is that there has not been much research and we all do not have enough
information.  So access to this network has been a joy.

Can I suggest for those who feel bogged...maybe only sign on once a month
and doing a GET Log command for the month may help...then you could browse
at your leisure....

Take Care.

Chris Dropik